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非正式照护网络对姑息治疗服务的看法:是帮助还是阻碍?

Informal care networks' views of palliative care services: Help or hindrance?

机构信息

a Institute of Health and Biomedical Innovation , Queensland University of Technology , Kelvin Grove , QLD , Australia.

b School of Social Sciences and Psychology , Western Sydney University , Penrith , Australia.

出版信息

Death Stud. 2018 Jul;42(6):362-370. doi: 10.1080/07481187.2017.1350216. Epub 2017 Jul 28.

DOI:10.1080/07481187.2017.1350216
PMID:28678634
Abstract

Most people indicate their preference to die at home; however, in the developed world, most die in hospital. Dying at home requires complex factors to be in place in health services and informal networks of care to successfully provide support. This study examines the ways health systems, services, and individual health care professionals influence care at home at the end of life. Three principles guide the reorientation of health services and enable their transition from hindrance to help: re-evaluation of organizational values, recognition of the primacy of caring networks, and realignment of the inherent paternalism in health care provision.

摘要

大多数人表示希望在家中离世;然而,在发达国家,大多数人是在医院去世的。在家中离世需要医疗服务和非正式照护网络具备复杂的因素,以成功提供支持。本研究考察了卫生系统、服务和个体医疗保健专业人员如何影响临终关怀。三条原则指导卫生服务的重新定位,使它们从障碍转变为帮助:重新评估组织价值观、承认关怀网络的首要地位,以及调整医疗服务中固有的家长式作风。

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