Pouraboli Batool, Abedi Heidar Ali, Abbaszadeh Abbass, Kazemi Majid
Department of neonatal and Pediatric Nursing, Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
Department of Nursing, Faculty of Nursing and Midwifery, Khorasgan-Isfahan Branch, Islamic Azad University, Isfahan, Iran.
J Caring Sci. 2017 Jun 1;6(2):127-139. doi: 10.15171/jcs.2017.013. eCollection 2017 Jun.
Self-care is the core concept of health care and may be considered as one's stabilization, and restoration as well as the improvement of his/her health and well-being. Looking at the process of Self-care from patients' perspective who suffer from thalassemia may assist the nurses and health care providers to facilitate the health process. Thus this study was conducted to discover the process of self-care in patients with major thalassemia. This qualitative study was conducted with grounded theory approach. 21 patients with major thalassemia from a Medical Research Center, supervised by Kerman Medical University, were selected through purposeful and theoretical sampling. Data were collected by unstructured interviews which lasted 30-60 minutes. These data were analyzed using the method of Corbin and Strauss. The main theme of "struggling to improve life quality" that included the sub-themes of "focus on needs of illness, "activating resources" and "restoring a new identity with thalassemia" were extracted from the data. This theme implies that participants endeavor to strengthen their self- efficacy via thalassemia. "Looking for strengthening self-efficacy in light of thalassemia" was the core theme in this study. Facilitating the process of self-care in patients with major thalassemia requires that they be helped so that their self-efficacy, influenced by real life conditions, might be strengthened in light of thalassemia. Increasing public awareness and social support may affect the recognition of individual, family and society.
自我护理是医疗保健的核心概念，可被视为一个人的稳定、恢复以及其健康和幸福的改善。从患有地中海贫血症的患者角度审视自我护理过程，可能有助于护士和医疗保健提供者推动健康进程。因此，本研究旨在探索重型地中海贫血症患者的自我护理过程。这项定性研究采用扎根理论方法进行。通过有目的的理论抽样，从克尔曼医科大学监督的一个医学研究中心选取了21名重型地中海贫血症患者。通过持续30 - 60分钟的非结构化访谈收集数据。这些数据采用科尔宾和施特劳斯的方法进行分析。从数据中提取了“努力提高生活质量”这一主要主题，其中包括“关注疾病需求”“激活资源”和“重塑地中海贫血症新身份”等子主题。这一主题意味着参与者努力通过地中海贫血症增强自我效能感。“在地中海贫血症背景下寻求增强自我效能感”是本研究的核心主题。促进重型地中海贫血症患者的自我护理过程要求给予他们帮助，以便受现实生活状况影响的自我效能感能在地中海贫血症背景下得到增强。提高公众意识和社会支持可能会影响个人、家庭和社会的认知。
