Hosseini Nazafarin, Sharif Farkhondeh, Ahmadi Fazlollah, Zare Mohammad
Social Determinants of Health Research Center, Yasuj University of Medical Sciences, Yasuj, Iran.
Department of Psychiatric Nursing, Community Based Psychiatric Nursing Care Research Center, Shiraz University of Medical Sciences, Shiraz, Iran.
Iran J Nurs Midwifery Res. 2016 Jan-Feb;21(1):54-62. doi: 10.4103/1735-9066.174748.
Epilepsy exposes patients to many physical, social, and emotional challenges. Thus, it seems to portray a complex picture and needs holistic care. Medical treatment and psychosocial part of epilepsy remain central to managing and improving the patient's qualify of life through team efforts. Some studies have shown the dimensions of self-management, but its management process of epilepsy patients, especially in Iran, is not clear. This study aimed to determine the disease management process in patients with epilepsy in Iran.
This qualitative approach and grounded theory study was conducted from January 2009 to February 2012 in Isfahan city (Iran). Thirty-two participants were recruited by the goal-oriented, and snowball sample selection and theoretical sampling methods. After conducting a total of 43 in-depth interviews with the participants, the researchers reached data saturation. Data were analyzed using Strauss and Corbin method.
With a focus on disease management process, researchers found three main themes and seven sub-themes as a psychosocial process (PSP). The main themes were: perception of threat to self-identity, effort to preserve self-identity, and burn out. The psychosocial aspect of the disease generated one main variable "the perception of identity loss" and one central variable "searching for self-identity."
Participants attributed threat to self-identity and burn out to the way their disease was managed requiring efforts to preserve their identity. Recommendations consist of support programs and strategies to improve the public perception of epilepsy in Iran, help patients accept their condition and preserve self-identity, and most importantly, enhance medical management of epilepsy.
癫痫使患者面临诸多身体、社会和情感方面的挑战。因此，它似乎呈现出一幅复杂的图景，需要全面的护理。癫痫的药物治疗和心理社会层面对于通过团队努力管理和改善患者生活质量仍然至关重要。一些研究已经表明了自我管理的维度，但其在癫痫患者中的管理过程，尤其是在伊朗，尚不清楚。本研究旨在确定伊朗癫痫患者的疾病管理过程。
本定性研究及扎根理论研究于2009年1月至2012年2月在伊朗伊斯法罕市进行。通过目标导向、滚雪球抽样和理论抽样方法招募了32名参与者。在对参与者进行了总共43次深入访谈后，研究人员达到了数据饱和。使用施特劳斯和科尔宾方法对数据进行了分析。
以疾病管理过程为重点，研究人员发现了三个主要主题和七个子主题，作为一个心理社会过程（PSP）。主要主题为：对自我认同的威胁感知、维护自我认同的努力以及倦怠。该疾病的心理社会层面产生了一个主要变量“身份丧失感”和一个核心变量“寻找自我认同”。
参与者将对自我认同的威胁和倦怠归因于他们疾病的管理方式，这需要努力维护他们的身份认同。建议包括支持项目和策略，以提高伊朗公众对癫痫的认识，帮助患者接受自身状况并维护自我认同，最重要的是，加强癫痫的医疗管理。
