Charles Lesley, Brémault-Phillips Suzette, Parmar Jasneet, Johnson Melissa, Sacrey Lori-Ann
Division of Care of the Elderly, Department of Family Medicine, University of Alberta, Edmonton, AB.
Department of Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, AB.
Can Geriatr J. 2017 Jun 30;20(2):75-84. doi: 10.5770/cgj.20.252. eCollection 2017 Jun.
The purpose of this study was to describe the experiences and challenges of supporting family caregivers of seniors with complex needs and to outline support strategies and research priorities aimed at supporting them.
A CIHR-funded, two-day conference entitled "Supporting Family Caregivers of Seniors: Improving Care and Caregiver Outcomes" was held. An integrated knowledge translation approach guided this planning conference. Day 1 included presentations of research evidence, followed by participant engagement Qualitative data was collected regarding facilitators, barriers/gaps, and recommendations for the provision of caregiver supports. Day 2 focused on determination of research priorities.
Identified facilitators to the provision of caregiver support included accessibility of health-care and community-based resources, availability of well-intended health-care providers, and recognition of caregivers by the system. Barriers/gaps related to challenges with communication, access to information, knowledge of what is needed, system navigation, access to financial resources, and current policies. Recommendations regarding caregiver services and research revolved around assisting caregivers to self-identify and seek support, formalizing caregiver supports, centralizing resources, making system navigation available, and preparing the next generation for caregiving.
A better understanding of the needs of family caregivers and ways to support them is critical to seniors' health services redesign.
本研究旨在描述为有复杂需求的老年人家庭照顾者提供支持的经历与挑战，并概述旨在为他们提供支持的策略和研究重点。
举办了一场由加拿大卫生研究院资助、为期两天的会议，名为“支持老年人家庭照顾者：改善护理与照顾者结局”。一种综合知识转化方法指导了此次规划会议。第一天包括研究证据的展示，随后是参与者互动环节，收集了关于促进因素、障碍/差距以及提供照顾者支持的建议的定性数据。第二天聚焦于确定研究重点。
确定的提供照顾者支持的促进因素包括医疗保健和社区资源的可及性、善意的医疗保健提供者的可得性以及系统对照顾者的认可。障碍/差距涉及沟通挑战、信息获取、所需知识、系统导航、财务资源获取以及现行政策。关于照顾者服务和研究的建议围绕协助照顾者自我识别并寻求支持、使照顾者支持正规化、集中资源、提供系统导航以及让下一代为照顾做好准备。
更好地理解家庭照顾者的需求以及支持他们的方式对于重新设计老年人健康服务至关重要。
