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塞尔维亚残疾儿童服务如何影响其家庭的生活质量。

How services for children with disabilities in Serbia affect the quality of life of their families.

机构信息

Department for Social Work and Social Policy, Faculty of Political Sciences, University of Belgrade, Jove Ilica 165, Belgrade, Serbia.

NGO Ideas, Vojvode Milenka 22, Belgrade, Serbia,.

出版信息

Res Dev Disabil. 2017 Sep;68:1-8. doi: 10.1016/j.ridd.2017.06.009. Epub 2017 Jul 7.

Abstract

BACKGROUND

Families that have children with disabilities face numerous difficulties related to the lack of services support, social isolation and poverty in Serbia. Mostly due to the prolonged effect of social and economic crisis, there are insufficient adequate and diverse community-based services for those families.

AIMS

The aim of the study was to examine the effect of newly introduced services on the quality of families' life.

METHODS

A pretest/posttest study was conducted at the beginning of service and one year later to evaluate the effect of services measured by Family Quality of Life Scale (Hoffman et al., 2006). The sample consists of 153 families of children with disabilities from 35 different places in Serbia.

RESULTS

The results show that the services generally improved the families' quality of life, particularly in the aspects targeted by services, but also had significant positive effect on family interaction and parenting. The services had the highest impact on the families that perceived the lowest life quality before using them. The life quality was improved, regardless of the type of services, but the effectiveness is affected by the severity of child disability.

IMPLICATIONS

The results might be useful for further steps in developing and evaluating individually and flexible tailored service that support families' needs and suits them the best.

摘要

背景

在塞尔维亚,有残疾儿童的家庭面临着许多困难,包括服务支持不足、社会孤立和贫困。由于社会经济危机的长期影响,这些家庭缺乏足够的、多样化的社区服务。

目的

本研究旨在探讨新引入的服务对家庭生活质量的影响。

方法

在服务开始时和一年后进行了预测试/后测试研究,以家庭生活质量量表(Hoffman 等人,2006 年)评估服务的效果。样本由来自塞尔维亚 35 个不同地方的 153 个残疾儿童家庭组成。

结果

结果表明,这些服务总体上提高了家庭的生活质量,特别是在服务针对的方面,但对家庭互动和育儿也有显著的积极影响。这些服务对那些在使用服务之前生活质量最低的家庭影响最大。无论服务类型如何,生活质量都有所提高,但服务的效果受到儿童残疾严重程度的影响。

意义

这些结果可能对进一步制定和评估个性化、灵活定制的服务具有参考价值,以满足家庭的需求并为其提供最佳支持。

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