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精神病患者的信息及决策需求：亲属的视角

Information and decision-making needs of psychiatric patients: the perspective of relatives.

作者信息

Liebherz Sarah, Tlach Lisa, Härter Martin, Dirmaier Jörg

机构信息

Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

出版信息

PeerJ. 2017 Jul 6;5:e3378. doi: 10.7717/peerj.3378. eCollection 2017.

DOI:10.7717/peerj.3378
PMID:28695064
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5501965/
Abstract

BACKGROUND

Mental illness may strongly affect relatives' lives. Therefore, it is important to empower relatives by providing health information according to their preferences.

METHODS

An online cross-sectional survey was conducted using a purpose-designed questionnaire on online health information and decision-support needs.

RESULTS

Prevalent reasons for online health information search of the 185 participating relatives were the need for general information and the insufficiency of the information given by the health care provider. The most difficult treatment decisions concerned the treatment setting (inpatient or outpatient) as well as the psychopharmacological treatment.

DISCUSSION

Since psychiatric patients' relatives report extensive information and decision-support needs, it is essential to address their needs in health information material. Assessment of relatives' needs when developing health information materials is recommended.

摘要

背景

精神疾病可能会对亲属的生活产生重大影响。因此，根据亲属的偏好提供健康信息，增强他们的能力很重要。

方法

使用专门设计的在线健康信息和决策支持需求问卷进行了一项在线横断面调查。

结果

185名参与调查的亲属进行在线健康信息搜索的普遍原因是需要一般信息以及医疗保健提供者提供的信息不足。最困难的治疗决策涉及治疗环境（住院或门诊）以及精神药物治疗。

讨论

由于精神病患者的亲属报告了广泛的信息和决策支持需求，因此在健康信息材料中满足他们的需求至关重要。建议在开发健康信息材料时评估亲属的需求。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/9392acc3ca91/peerj-05-3378-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/c80e5e04500b/peerj-05-3378-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/5e7b133df2b2/peerj-05-3378-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/9392acc3ca91/peerj-05-3378-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/c80e5e04500b/peerj-05-3378-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/5e7b133df2b2/peerj-05-3378-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b0f0/5501965/9392acc3ca91/peerj-05-3378-g003.jpg

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Information and decision-making needs among people with affective disorders - results of an online survey.情感障碍患者的信息及决策需求——一项在线调查的结果
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Information and Decision-Making Needs Among People with Anxiety Disorders: Results of an Online Survey.
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Patient. 2015 Dec;8(6):531-9. doi: 10.1007/s40271-015-0116-1.
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