McKenzie Karen, Mayer Claire, Whelan Kathryn J, McNall Anne, Noone Steve, Chaplin Jill
Northumbria University, Newcastle, UK.
Northumberland Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
Health Soc Care Community. 2018 Jan;26(1):e56-e63. doi: 10.1111/hsc.12475. Epub 2017 Jul 10.
This qualitative study explored the views of family carers about the support that their adult children with an intellectual disability had received in relation to their behaviour that challenged. There was a particular focus on positive behavioural support (PBS), although some participants spoke more generally in terms of positive approaches. Semi-structured interviews with eight family carers were analysed using inductive thematic analysis. Four key themes were identified. Good support, of which PBS was an example, was seen as both having reduced behaviours that challenged and having a wider positive impact on the quality of life of the individual and their families. Key features highlighted were: technical knowledge and skill; a strong value base of warmth, acceptance and respect; a collaborative, consistent approach; open communication; and the extension of support to the family carer when needed. It was recognised that there is a need for broad systemic change and for the application of a workforce development model that takes account of the needs of staff, carers and those working in wider systems that have contact with people with an intellectual disability.
这项定性研究探讨了家庭照顾者对于其成年智障子女在应对具有挑战性的行为方面所获得支持的看法。研究特别关注积极行为支持（PBS），尽管一些参与者更广泛地谈到了积极方法。运用归纳主题分析法对八位家庭照顾者进行的半结构化访谈进行了分析。确定了四个关键主题。良好的支持，积极行为支持就是其中一个例子，被视为既减少了具有挑战性的行为，又对个人及其家庭的生活质量产生了更广泛的积极影响。突出的关键特征包括：专业知识和技能；基于温暖、接纳和尊重的强大价值基础；协作、一致的方法；开放的沟通；以及在需要时向家庭照顾者提供支持。人们认识到，需要进行广泛的系统性变革，并应用一种劳动力发展模式，该模式要考虑到工作人员、照顾者以及与智障人士有接触的更广泛系统中工作人员的需求。
