双相情感障碍在线支持小组使用情况的国际多中心调查。
International multi-site survey on the use of online support groups in bipolar disorder.
作者信息
Bauer Rita, Conell Jörn, Glenn Tasha, Alda Martin, Ardau Raffaella, Baune Bernhard T, Berk Michael, Bersudsky Yuly, Bilderbeck Amy, Bocchetta Alberto, Bossini Letizia, Castro Angela M Paredes, Cheung Eric Y W, Chillotti Caterina, Choppin Sabine, Zompo Maria Del, Dias Rodrigo, Dodd Seetal, Duffy Anne, Etain Bruno, Fagiolini Andrea, Hernandez Miryam Fernández, Garnham Julie, Geddes John, Gildebro Jonas, Gonzalez-Pinto Ana, Goodwin Guy M, Grof Paul, Harima Hirohiko, Hassel Stefanie, Henry Chantal, Hidalgo-Mazzei Diego, Kapur Vaisnvy, Kunigiri Girish, Lafer Beny, Larsen Erik R, Lewitzka Ute, Licht Rasmus W, Hvenegaard Lund Anne, Misiak Blazej, Piotrowski Patryk, Monteith Scott, Munoz Rodrigo, Nakanotani Takako, Nielsen René E, O'donovan Claire, Okamura Yasushi, Osher Yamima, Reif Andreas, Ritter Philipp, Rybakowski Janusz K, Sagduyu Kemal, Sawchuk Brett, Schwartz Elon, Scippa Ângela M, Slaney Claire, Sulaiman Ahmad H, Suominen Kirsi, Suwalska Aleksandra, Tam Peter, Tatebayashi Yoshitaka, Tondo Leonardo, Vieta Eduard, Vinberg Maj, Viswanath Biju, Volkert Julia, Zetin Mark, Whybrow Peter C, Bauer Michael
机构信息
a Department of Psychiatry and Psychotherapy , Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden , Germany.
b AMEOS Klinika Holstein , Neustadt , Germany.
出版信息
Nord J Psychiatry. 2017 Aug;71(6):473-476. doi: 10.1080/08039488.2017.1334819. Epub 2017 Jul 11.
BACKGROUND
Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.
AIMS
To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.
METHODS
The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data.
RESULTS AND CONCLUSIONS
The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.
背景
同伴支持是双相情感障碍康复的既定组成部分，在线支持小组可能提供机会，让患者在方便的时候更多地利用同伴支持。先前关于双相情感障碍的研究报告了在线支持小组的价值。
目的
在一项关于信息寻求的更大规模项目中，了解双相情感障碍患者对在线支持小组的使用情况。
方法
结果基于一项针对双相情感障碍患者信息寻求情况的一次性纸质匿名调查，该调查被翻译成12种语言。调查于2014年3月至2016年1月期间完成，包括关于在线支持小组使用情况的问题。所有患者均由精神科医生诊断。分析包括描述性统计和用于处理相关数据的一般估计方程。
结果与结论
17个国家的1222名患者完成了调查。患者使用互联网的比例与普通大众相似。在上网查找双相情感障碍信息的互联网用户中，只有21.0%阅读或参与了双相情感障碍的支持小组、聊天或论坛（占总样本的12.8%）。鉴于先前研究报告的益处，需要阐明在线支持小组在双相情感障碍中的作用。由于只有少数患者使用在线支持小组，未来研究面临分析挑战。
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