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网络支持:在线自助论坛分析(双相情感障碍的在线自助论坛)

Cyber-support: an analysis of online self-help forums (online self-help forums in bipolar disorder).

作者信息

Bauer Rita, Bauer Michael, Spiessl Hermann, Kagerbauer Tanja

机构信息

Department of Psychiatry and Psychotherapy, University of Regensburg, Regensburg, Germany.

出版信息

Nord J Psychiatry. 2013 Jun;67(3):185-90. doi: 10.3109/08039488.2012.700734. Epub 2012 Jul 23.

DOI:10.3109/08039488.2012.700734
PMID:22817138
Abstract

BACKGROUND

The Internet is becoming increasingly important in psychiatry and psychotherapy.

AIMS

The objective of this study was to evaluate if and how online self-help forums are used by patients with bipolar disorders, their relatives and treating professionals.

METHODS

A total of 2400 postings in two online forums were analysed qualitatively and quantitatively.

RESULTS

"Disclosure", "friendship" and "online-group cohesion" were the main self-help mechanisms. The topics most discussed were "social network", "symptoms of the illness" and "medication". Factor analyses revealed three factors concerning self-help mechanisms: "group cohesion", "emotional support" and "exchange of information", as well as three factors concerning fields of interest: "illness-related aspects", "social aspects" and "financial and legal issues".

CONCLUSION

We infer that the main interest in participating in online forums for patients with bipolar disorders and their relatives is to share emotions and to discuss their daily struggles with the illness. Our study also reveals that social networking is very important for patients coping with bipolar disorders. Psycho-educative programmes should focus on those aspects.

摘要

背景

互联网在精神病学和心理治疗中变得越来越重要。

目的

本研究的目的是评估双相情感障碍患者、其亲属和治疗专业人员是否以及如何使用在线自助论坛。

方法

对两个在线论坛中的2400条帖子进行了定性和定量分析。

结果

“披露”“友谊”和“在线群体凝聚力”是主要的自助机制。讨论最多的主题是“社交网络”“疾病症状”和“药物治疗”。因素分析揭示了与自助机制有关的三个因素:“群体凝聚力”“情感支持”和“信息交流”,以及与感兴趣领域有关的三个因素:“疾病相关方面”“社会方面”和“财务与法律问题”。

结论

我们推断,双相情感障碍患者及其亲属参与在线论坛的主要兴趣在于分享情感并讨论他们与疾病的日常斗争。我们的研究还表明,社交网络对双相情感障碍患者的应对非常重要。心理教育项目应关注这些方面。

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