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加纳聋人群体性与生殖健康需求评估:方法挑战与伦理考量

Sexual and reproductive health needs assessment with deaf people in Ghana: Methodological challenges and ethical concerns.

作者信息

Mprah Wisdom K

机构信息

Department of Disability and Human Development, University of Illinois at Chicago, United States of America.

出版信息

Afr J Disabil. 2013 Sep 6;2(1):55. doi: 10.4102/ajod.v2i1.55. eCollection 2013.

Abstract

BACKGROUND

Deafness is a complex and multifaceted phenomenon. The different ways of perceiving and understanding deafness have practical implications for research with deaf people. Whilst the deaf community is not homogenous, it is generally distinct from the hearing population. Consequently, the appropriateness of applying research methods and informed concern processes designed for the hearing population in research with deaf people has been questioned.

OBJECTIVES

This article reflected on some methodological challenges and ethical concerns arising from conducting a sexual and reproductive health needs assessment with deaf people in Ghana. The aim was to provide some perspectives on some of the challenges associated with doing research with deaf people.

METHOD

The study was a two phase, sequential, mixed methods design, consisting of three focus groups to assist in the development of a survey and then the implementation of the survey for needs assessment data collection. The number of participants in the study was 179, consisting of 26 focus group participants: 7 executives of the Ghana National Association of the Deaf (GNAD), 10 male adults, and 9 female adults. There were 152 survey respondents (students, women and men) and one key informant. All participants, except the key informant, were deaf people.

RESULTS

The application of traditional research methods to studies involving deaf participants presents numerous methodological and ethical dilemmas associated mainly with deaf people's unique cultural and linguistic characteristics.

CONCLUSION

Research methods should not be taken as universal guidelines for conducting research in all settings because of differences in settings.

摘要

背景

耳聋是一种复杂且多方面的现象。对耳聋的不同认知和理解方式对聋人研究具有实际影响。虽然聋人群体并非同质化,但通常与听力正常人群有所不同。因此,将为听力正常人群设计的研究方法和知情关注流程应用于聋人研究的适用性受到了质疑。

目的

本文反思了在加纳对聋人进行性与生殖健康需求评估时出现的一些方法学挑战和伦理问题。目的是就与聋人开展研究相关的一些挑战提供一些观点。

方法

该研究采用两阶段、序列式混合方法设计,包括三个焦点小组以协助制定调查问卷,然后实施该问卷以收集需求评估数据。研究参与者有179人,包括26名焦点小组参与者:7名加纳全国聋人协会(GNAD)的管理人员、10名成年男性和9名成年女性。有152名调查受访者(学生、女性和男性)以及一名关键信息提供者。除关键信息提供者外,所有参与者均为聋人。

结果

将传统研究方法应用于涉及聋人参与者的研究存在众多方法学和伦理困境,主要与聋人独特的文化和语言特征有关。

结论

由于研究背景存在差异,研究方法不应被视为在所有情况下开展研究的通用指南。

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Toward ethical research practice with deaf participants.迈向针对聋人参与者的符合伦理的研究实践。
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