Department of Philosophy and Bioethics, Faculty of Health Sciences, Jagiellonian University Medical College, Krakow, Poland.
Research Ethics in Medicine Study Group (REMEDY), Jagiellonian University Medical College, Krakow, Poland.
J Deaf Stud Deaf Educ. 2024 Sep 20;29(4):443-455. doi: 10.1093/jdsade/enae024.
In this article, we explore ethical issues of Deaf people's engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers which resulted in 27 eligible papers. We analyzed the data using thematic synthesis and developed 5 analytical themes. The results present research as a struggle for Deaf people and emphasize the need for changes regarding recognition of Deaf research in a cross-cultural context, maintaining equal and partner relations, and provision of accessible communication. Our research contributes to understanding what the ethical inclusion of Deaf people in research implies. It may also support the development of evidence-based normative recommendations and scientific cooperation between Deaf and hearing people.
在本文中，我们探讨了聋人参与研究的伦理问题。为了关注聋人的观点，我们在定性证据综合中调查了现有的定性和混合方法研究。我们的综合研究基于系统的数据库搜索（Scopus、PubMed）和对包括的论文的参考文献检查，结果有 27 篇合格的论文。我们使用主题综合分析数据，并制定了 5 个分析主题。结果表明，研究是聋人斗争的体现，并强调需要在跨文化背景下承认聋人研究，保持平等和伙伴关系，并提供可访问的沟通。我们的研究有助于理解将聋人纳入研究的伦理含义。它也可能支持基于证据的规范建议的制定和聋人和听力人士之间的科学合作。
