• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

一组少牙症成年人中外胚层发育不良、心理困扰与生活质量之间的关联。

Associations between ectodermal dysplasia, psychological distress and quality of life in a group of adults with oligodontia.

作者信息

Saltnes Solfrid Sørgjerd, Jensen Janicke Liaaen, Sæves Rønnaug, Nordgarden Hilde, Geirdal Amy Østertun

机构信息

a Department of Oral Surgery and Oral Medicine, Faculty of Dentistry , University of Oslo , Oslo , Norway.

b TAKO-Centre Lovisenberg Diaconal Hospital , Oslo , Norway.

出版信息

Acta Odontol Scand. 2017 Nov;75(8):564-572. doi: 10.1080/00016357.2017.1357189. Epub 2017 Jul 28.

DOI:10.1080/00016357.2017.1357189
PMID:28754083
Abstract

OBJECTIVE

The aim of this study was to assess demographics, self-reported signs of ectodermal dysplasia (problems with hair, nails, skin and sweat glands), present teeth, previous dental treatment, psychological distress and QoL in individuals with oligodontia, and to explore the associations between these factors. We also aimed to compare the level of psychological distress and QoL between the study group and normative samples.

METHODS

Forty-seven individuals with oligodontia registered at a resource centre in Norway were included in the study. The participants completed self-administered questionnaires on demographics, ED signs, dental treatments, psychological distress and QoL (overall, health-related- and oral health-related QoL). Relevant statistics (independent t-test, correlation analysis and hierarchical multiple regressions) were used.

RESULTS

Thirty-five participants reported ED signs. Forty-one participants had tooth replacements (nine had removable dentures). Sixteen had ≤10 present teeth, 13 perceived dry mouth and seven were unemployed. Persons with ≤10 present teeth had higher anxiety- and depression-scores than those having >10 present teeth. Unemployment, dry mouth and removable dentures indicated poor health-related- and oral health related QoL. Compared to a normative sample; the study group had significantly poorer mental health (MH)-related QoL, mean (SD); (51.1(8.2) versus 46.8(9.3), p < .001) and more anxiety, mean (SD); (4.5(3.1) versus 6.7(3.6), p < .001). ED signs and treatments were most important for psychological distress and MH related QoL (MCS), whereas demographic parameters were most important for the other QoL measures.

CONCLUSIONS

The psychological burden of oligodontia is significant, emphasizing the importance of a holistic approach by caregivers.

摘要

目的

本研究旨在评估少牙症患者的人口统计学特征、自我报告的外胚层发育不良体征(毛发、指甲、皮肤和汗腺问题)、现存牙齿、既往牙科治疗情况、心理困扰和生活质量,并探讨这些因素之间的关联。我们还旨在比较研究组与正常样本之间的心理困扰水平和生活质量。

方法

纳入在挪威一个资源中心登记的47名少牙症患者。参与者完成了关于人口统计学、外胚层发育不良体征、牙科治疗、心理困扰和生活质量(总体、与健康相关及与口腔健康相关的生活质量)的自填式问卷。使用了相关统计方法(独立t检验、相关分析和分层多元回归)。

结果

35名参与者报告有外胚层发育不良体征。41名参与者进行了牙齿修复(9人佩戴可摘义齿)。16人现存牙齿≤10颗,13人感觉口干,7人失业。现存牙齿≤10颗的人焦虑和抑郁得分高于现存牙齿>10颗的人。失业、口干和佩戴可摘义齿表明与健康相关及与口腔健康相关的生活质量较差。与正常样本相比,研究组与心理健康(MH)相关的生活质量显著较差,均值(标准差);(51.1(8.2)对46.8(9.3),p < .001),且焦虑程度更高,均值(标准差);(4.5(3.1)对6.7(3.6),p < .001)。外胚层发育不良体征和治疗对心理困扰及与心理健康相关的生活质量(MCS)最为重要,而人口统计学参数对其他生活质量指标最为重要。

结论

少牙症的心理负担较重,这凸显了护理人员采取整体方法的重要性。

相似文献

1
Associations between ectodermal dysplasia, psychological distress and quality of life in a group of adults with oligodontia.一组少牙症成年人中外胚层发育不良、心理困扰与生活质量之间的关联。
Acta Odontol Scand. 2017 Nov;75(8):564-572. doi: 10.1080/00016357.2017.1357189. Epub 2017 Jul 28.
2
Living with orofacial conditions: psychological distress and quality of life in adults affected with Treacher Collins syndrome, cherubism, or oligodontia/ectodermal dysplasia-a comparative study.患有口面部疾病的生活状况:患有特雷彻·柯林斯综合征、家族性颌骨纤维异常增殖症或牙发育不全/外胚层发育不良的成年人的心理困扰和生活质量——一项比较研究
Qual Life Res. 2015 Apr;24(4):927-35. doi: 10.1007/s11136-014-0826-1. Epub 2014 Oct 25.
3
Oligodontia ectodermal dysplasia--on signs, symptoms, genetics, and outcomes of dental treatment.少牙外胚层发育不全——关于体征、症状、遗传学及牙科治疗结果
Swed Dent J Suppl. 2010(205):13-78, 7-8.
4
Experiences of daily life and oral rehabilitation in oligodontia - a qualitative study.少牙症患者的日常生活与口腔修复体验——一项定性研究
Acta Odontol Scand. 2019 Apr;77(3):197-204. doi: 10.1080/00016357.2018.1535137. Epub 2019 Jan 16.
5
Oligodontia is associated with extra-oral ectodermal symptoms and low whole salivary flow rates.少牙症与口外外胚层症状及全唾液流速降低有关。
Oral Dis. 2001 Jul;7(4):226-32.
6
Signs and symptoms from ectodermal organs in young Swedish individuals with oligodontia.瑞典少牙症年轻个体外胚层器官的体征和症状。
Int J Paediatr Dent. 2006 Sep;16(5):320-6. doi: 10.1111/j.1365-263X.2006.00741.x.
7
Parental perception on oral health-related quality of life and dental features of ectodermal dysplasia and isolated hypodontia in children.家长对儿童外胚层发育不良和孤立性牙缺失的口腔健康相关生活质量和牙齿特征的看法。
BMC Oral Health. 2021 Oct 9;21(1):510. doi: 10.1186/s12903-021-01878-5.
8
Prosthetic rehabilitation with fixed prosthesis of a 5-year-old child with Hypohidrotic Ectodermal Dysplasia and Oligodontia: a case report.一名患有少汗型外胚层发育不良和少牙症的5岁儿童的固定义齿修复:病例报告
J Med Case Rep. 2019 Nov 8;13(1):329. doi: 10.1186/s13256-019-2268-4.
9
Psychological status and quality of life among primary caregivers of individuals with mental illness: a hospital based study.精神疾病患者主要照料者的心理状态与生活质量:一项基于医院的研究。
Health Qual Life Outcomes. 2017 May 19;15(1):106. doi: 10.1186/s12955-017-0676-y.
10
Disturbances of dental development distinguish patients with oligodontia-ectodermal dysplasia from isolated oligodontia.牙齿发育紊乱将表现牙缺失-外胚层发育不全的患者与孤立性牙缺失患者区分开来。
Orthod Craniofac Res. 2018 Feb;21(1):48-56. doi: 10.1111/ocr.12214. Epub 2017 Dec 22.

引用本文的文献

1
Ectodermal dysplasia: a narrative review of the clinical and biological aspects relevant to oral health.外胚层发育不全:与口腔健康相关的临床和生物学方面的叙述性综述
Front Pediatr. 2025 Feb 27;13:1523313. doi: 10.3389/fped.2025.1523313. eCollection 2025.
2
Multidisciplinary interventions in ectodermal dysplasia: A clinical case report.外胚层发育不良的多学科干预:一例临床病例报告。
J Family Med Prim Care. 2024 Nov;13(11):5407-5410. doi: 10.4103/jfmpc.jfmpc_844_24. Epub 2024 Nov 18.
3
Difficulties experienced by dentists and orthodontists regarding ethical issues when announcing the diagnosis of a rare oral disease: a qualitative study in Marseille, France.
牙医和正畸医生在宣布罕见口腔疾病诊断时遇到的伦理问题:法国马赛的一项定性研究
Eur Arch Paediatr Dent. 2024 Apr;25(2):169-179. doi: 10.1007/s40368-024-00864-z. Epub 2024 Mar 8.
4
The Ectodermal Dysplasias-Burden of Disease Score: Development and Validation of an Ectodermal Dysplasia Family/Parental Burden Score.外胚层发育不全疾病负担评分:外胚层发育不全家庭/父母负担评分的制定与验证。
Acta Derm Venereol. 2023 Aug 30;103:adv5203. doi: 10.2340/actadv.v103.5203.
5
Functional and clinical analysis of five variants associated with ectodermal dysplasia but with a hard-to-predict significance.与外胚层发育异常相关但意义难以预测的五个变异体的功能和临床分析
Front Genet. 2022 Jul 18;13:934395. doi: 10.3389/fgene.2022.934395. eCollection 2022.
6
Rehabilitation Considerations for Very Young Children with Severe Oligodontia due to Ectodermal Dysplasia: Report of Three Clinical Cases with a 2-Year Follow-Up.外胚层发育不良所致严重少牙畸形幼儿的康复考量:三例临床病例报告及两年随访
Case Rep Dent. 2022 Mar 22;2022:9925475. doi: 10.1155/2022/9925475. eCollection 2022.
7
Parental perception on oral health-related quality of life and dental features of ectodermal dysplasia and isolated hypodontia in children.家长对儿童外胚层发育不良和孤立性牙缺失的口腔健康相关生活质量和牙齿特征的看法。
BMC Oral Health. 2021 Oct 9;21(1):510. doi: 10.1186/s12903-021-01878-5.
8
Subjective Oral Health-Related Quality of Life and Objective Oral Health in People with Ectodermal Dysplasia.患有外胚层发育不良人群的主观口腔健康相关生活质量和客观口腔健康。
Int J Environ Res Public Health. 2020 Dec 28;18(1):143. doi: 10.3390/ijerph18010143.
9
Improvement in the Quality of Life of a Patient of Ectodermal Dysplasia with Reconstructive Surgeries.一名外胚层发育不良患者通过重建手术提高生活质量
J Cutan Aesthet Surg. 2019 Oct-Dec;12(4):244-247. doi: 10.4103/JCAS.JCAS_17_19.
10
Oral health related quality of life of children and adolescents affected by rare orofacial diseases: a questionnaire-based cohort study.儿童和青少年罕见口面疾病患者的口腔健康相关生活质量:基于问卷调查的队列研究。
Orphanet J Rare Dis. 2019 Jun 4;14(1):124. doi: 10.1186/s13023-019-1109-2.