Department of Cranio-Maxillofacial Surgery, Research Unit Rare Diseases with Orofacial Manifestations, University Hospital Münster, Albert-Schweitzer-Campus 1, Building W 30, D-48149 Münster, Germany.
Department of Prosthetic Dentistry, Center for Dental and Oral Medicine, University Medical Center Hamburg-Eppendorf, Martinistrasse 52, D-20251 Hamburg, Germany.
Int J Environ Res Public Health. 2020 Dec 28;18(1):143. doi: 10.3390/ijerph18010143.
Ectodermal dysplasia (ED) refers to a heterogeneous group of genetic diseases of the skin, skin appendages, and teeth. People with ED experience a poorer oral health-related quality of life (OHRQoL) compared to the general population. The aim of this study was to examine the OHRQoL of people with ED and to measure their objective physical oral health to confirm or disprove evidence of poorer oral health in this population. To determine OHRQoL, the German version of the 14-item Oral Health Impact Profile (OHIP-14G) was used. All the participants in the study were clinically examined, and the measured parameters were recorded using the Physical Oral Health Index (PhOX). In total, 10 male and 11 female participants, with an average age of 22.0 ± 9.0 years, were included in this study. The OHIP-14G summary score was 23.9 (±15.2) points (range: 0-56 points). The PhOX summary score was 61.2 (±5.1) points (range: 22-80 points). The findings indicated that both the OHRQoL and physical oral health of the participants were highly impaired and that their objective and subjective oral health were worse than those of the general population in Germany.
外胚层发育不全 (ED) 是一组异质性的皮肤、皮肤附属物和牙齿遗传疾病。与一般人群相比，ED 患者的口腔健康相关生活质量 (OHRQoL) 更差。本研究旨在评估 ED 患者的 OHRQoL，并测量其客观的口腔健康状况，以证实或反驳该人群口腔健康状况较差的证据。为了确定 OHRQoL，使用了德语版的 14 项口腔健康影响量表 (OHIP-14G)。研究中的所有参与者都接受了临床检查，并用物理口腔健康指数 (PhOX) 记录了测量参数。共有 10 名男性和 11 名女性参与者，平均年龄为 22.0±9.0 岁，纳入本研究。OHIP-14G 总分 23.9(±15.2)分（范围：0-56 分）。PhOX 总分 61.2(±5.1)分（范围：22-80 分）。研究结果表明，参与者的 OHRQoL 和口腔健康均受到严重损害，其客观和主观口腔健康状况均劣于德国一般人群。
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