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[围产期死亡后的父母哀伤]

[Parental mourning after a perinatal loss].

作者信息

de Mézerac I, Caeymaex L

机构信息

Présidente de l'Association SPAMA, soins palliatifs et accompagnement en maternité, 98, rue Royale, 59800 Lille, France.

Service de médecine néonatale, centre hospitalier intercommunal de Créteil, 40, avenue de Verdun, 94000 Créteil, France; Ceditec, université Paris Est Créteil-UPEC, 94000 Créteil France.

出版信息

Arch Pediatr. 2017 Sep;24(9):877-883. doi: 10.1016/j.arcped.2017.06.015. Epub 2017 Jul 26.

Abstract

The loss of a close friend or relative is always an ordeal. When this loved one is a baby, born or even unborn, a number of specific aspects have been reported by parents and researchers. The specificities of perinatal mourning have been progressively recognized since the 1970s, with increasing literature on this topic. Its complexity should be acknowledged by healthcare professionals who cope with perinatal loss, to allow them to offer adapted familial support. This paper is written by a mother, a founding member of a French nonprofit organization supporting parents in case of a prenatal or postnatal life-limiting disorder (Association SPAMA, soins palliatifs et accompagnement en maternité) with an internet support forum and a neonatologist involved in research with parents after the loss of their baby. It attempts to describe how parents experience this situation and how palliative care provides a source of inspiration to families and helps them give meaning to these situations.

摘要

失去亲密的朋友或亲人总是一场折磨。当这个所爱的人是一个婴儿,无论是已出生还是未出生时,父母和研究人员都报告了一些具体情况。自20世纪70年代以来,围产期哀悼的特殊性逐渐得到认可,关于这一主题的文献也越来越多。应对围产期损失的医疗保健专业人员应该认识到其复杂性,以便能够提供适当的家庭支持。本文由一位母亲撰写,她是法国一个非营利组织的创始成员,该组织在产前或产后出现危及生命的疾病时为父母提供支持(围产期姑息治疗与陪伴协会,SPAMA),设有一个互联网支持论坛,还有一位新生儿科医生,他在婴儿夭折后与父母一起参与研究。本文试图描述父母如何经历这种情况,以及姑息治疗如何为家庭提供灵感来源,并帮助他们理解这些情况的意义。

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