Yi Hee Jung, Nam Seok In
a School of Social Welfare , Yonsei University , Seodaemun-gu , Seoul , South Korea.
Soc Work Health Care. 2017 Oct;56(9):840-854. doi: 10.1080/00981389.2017.1353569. Epub 2017 Aug 1.
The aim of this study was to investigate both strategies for coping with stigma and the effects of participating in advocacy. The participants were childhood cancer survivors who had been diagnosed before the age of 18 years who had completed treatment. An embedded-design mixed-methods approach was used with 30 interview scripts, and 145 survey results were collected. Coping strategies for the stigma of cancer were "secrecy, avoid stereotypes, and discrimination" and "disclosure of medical history." Participation in advocacy confirmed self-worth, helped in achievement, and promoted social skills. Quantitative analysis showed that greater advocacy participation was associated with higher levels of posttraumatic growth. This study could provide support for advocacy among childhood cancer survivors by demonstrating its positive effects.
本研究的目的是调查应对耻辱感的策略以及参与宣传活动的效果。参与者是18岁之前被诊断出患有癌症且已完成治疗的儿童癌症幸存者。采用嵌入式设计的混合方法,收集了30份访谈脚本和145份调查结果。应对癌症耻辱感的策略是“保密、避免刻板印象和歧视”以及“披露病史”。参与宣传活动能确认自我价值、有助于取得成就并提升社交技能。定量分析表明,更多地参与宣传活动与更高水平的创伤后成长相关。本研究通过证明其积极效果,可为儿童癌症幸存者的宣传活动提供支持。