Villarreal-Garza Cynthia, Castro-Sánchez Andrea, Platas Alejandra, Miaja Melina, Mohar-Betancourt Alejandro, Barragan-Carrillo Regina, Fonseca Alan, Vega Yoatzin, Martinez-Cannon B Alejandra, Aguilar Dione, Bargalló-Rocha Enrique, Cardona-Huerta Servando, Peña-Curiel Omar, Matus-Santoso Juan
Joven & Fuerte: Programa para la Atención e Investigación de Mujeres Jóvenes con Cáncer de Mama, Mexico City, Mexico.
Department of Research and Breast Tumors, Instituto Nacional de Cancerología, Mexico City, Mexico.
Rev Invest Clin. 2017 Jul-Aug;69(4):223-228. doi: 10.24875/ric.17002280.
Despite the high rates of breast cancer among young Mexican women, their special needs and concerns have not been systematically addressed. To fulfill these unsatisfied demands, we have developed "Joven & Fuerte: Program for Young Women with Breast Cancer in Mexico," the first program dedicated to the care of young breast cancer patients in Latin America, which is taking place at the National Cancer Institute of Mexico and the two medical facilities of the Instituto Tecnológico y de Estudios Superiores de Monterrey. The program was created to optimize the complex clinical and psychosocial care of these patients, enhance education regarding their special needs, and promote targeted research, as well as to replicate this program model in other healthcare centers across Mexico and Latin America. From November 2013 to February 2017, the implementation of the "Joven & Fuerte" program has delivered specialized care to 265 patients, through the systematic identification of their particular needs and the provision of fertility, genetic, and psychological supportive services. Patients and families have engaged in pedagogic activities and workshops and have created a motivated and empowered community. The program developed and adapted the first educational resources in Spanish dedicated for young Mexican patients, as well as material for healthcare providers. As for research, a prospective cohort of young breast cancer patients was established to characterize clinicopathological features and psychosocial effects at baseline and during follow-up, as a guide for the development of specific cultural interventions addressing this vulnerable group. Eventually, it is intended that the program's organization and structure can reach national and international interactions and serve as a platform for other countries.
尽管墨西哥年轻女性的乳腺癌发病率很高，但她们的特殊需求和关切尚未得到系统解决。为了满足这些未得到满足的需求，我们开发了“年轻且坚强：墨西哥年轻乳腺癌女性项目”，这是拉丁美洲首个致力于照顾年轻乳腺癌患者的项目，该项目在墨西哥国家癌症研究所和蒙特雷理工学院的两家医疗机构开展。该项目旨在优化对这些患者的复杂临床和心理社会护理，加强关于她们特殊需求的教育，促进针对性研究，并在墨西哥和拉丁美洲的其他医疗中心复制这一项目模式。从2013年11月到2017年2月，“年轻且坚强”项目的实施通过系统识别患者的特殊需求并提供生育、基因和心理支持服务，为265名患者提供了专业护理。患者及其家人参与了教学活动和工作坊，并创建了一个积极且有能力的社区。该项目开发并改编了首批专门为墨西哥年轻患者准备的西班牙语教育资源，以及面向医疗服务提供者的材料。在研究方面，建立了一个年轻乳腺癌患者的前瞻性队列，以在基线和随访期间描述临床病理特征和心理社会影响，作为制定针对这一弱势群体的特定文化干预措施的指南。最终，该项目的组织和结构旨在实现国内和国际交流，并成为其他国家的一个平台。
