Ng Wai I, Smith Graeme Drummond
Education Department, Kiang Wu Nursing College of Macau, Macau SAR, People's Republic of China.
Education Department, School of Health & Social Care, Edinburgh Napier University, Edinburgh, Midlothian, UK.
Int J Chron Obstruct Pulmon Dis. 2017 Jul 20;12:2129-2139. doi: 10.2147/COPD.S136216. eCollection 2017.
Self-management education programs (SMEPs) are potentially effective in the symptomatic management of COPD. Little is presently known about the effectiveness of these programs in Chinese COPD patients. The objective of this study was to evaluate the effectiveness of a specifically designed SMEP on levels of self-efficacy in Chinese patients with COPD.
Based on the Medical Research Council framework for evaluating complex interventions, an exploratory phase randomized controlled trial was employed to examine the effects of an SMEP. Self-efficacy was the primary outcome using the COPD Self-efficacy Scale, measured at baseline and 6 months after the program. Qualitative data were sequentially collected from these patients via three focus groups to supplement the quantitative findings.
The experimental group displayed significant improvement in their general self-efficacy ( =-2.44, =0.015) and specifically in confronting 1) physical exertion ( =-2.57, =0.01), 2) weather/environment effects ( =-2.63, <0.001) and 3) intense emotions ( =-2.54, =0.01). Three themes emerged from the focus groups: greater disease control, improved psychosocial well-being and perceived incapability and individuality. The connection of the quantitative and qualitative data demonstrated that individual perceptual constancy of patients could be a determining factor modulating the effectiveness of this type of intervention.
These findings highlight the potential putative benefits of an SMEP in Chinese patients with COPD. Further attention should be given to cultural considerations when developing this type of intervention in Chinese populations with COPD and other chronic diseases.
自我管理教育项目(SMEPs)在慢性阻塞性肺疾病(COPD)的症状管理中可能有效。目前对于这些项目在中国COPD患者中的有效性知之甚少。本研究的目的是评估一项专门设计的SMEP对中国COPD患者自我效能水平的有效性。
基于医学研究理事会评估复杂干预措施的框架,采用探索性阶段随机对照试验来检验SMEP的效果。自我效能是主要结局指标,使用COPD自我效能量表,在基线和项目实施6个月后进行测量。通过三个焦点小组依次收集这些患者的定性数据,以补充定量研究结果。
实验组在总体自我效能方面有显著改善(=-2.44,=0.015),特别是在应对1)体力活动(=-2.57,=0.01)、2)天气/环境影响(=-2.63,<0.001)和3)强烈情绪(=-2.54,=0.01)方面。焦点小组出现了三个主题:更好的疾病控制、改善的心理社会幸福感以及感知到的能力不足和个性。定量和定性数据的关联表明,患者的个体感知稳定性可能是调节这类干预措施有效性的决定因素。
这些发现突出了SMEP对中国COPD患者潜在的假定益处。在为中国COPD患者及其他慢性病患者开发这类干预措施时,应进一步关注文化因素。