Pediatric Critical Care Medicine, Department of Pediatrics, Massachusetts General Hospital, Boston, MA, USA.
Department of Pediatrics, Massachusetts General Hospital, Boston, MA, USA.
J Intensive Care Med. 2019 Nov-Dec;34(11-12):973-977. doi: 10.1177/0885066617723278. Epub 2017 Aug 11.
A child's pediatric intensive care unit (PICU) admission may have wide-ranging family implications. We assessed nonmedical out-of-pocket expenses (NMOOPEs) and disruptions in work and normal life for parents with a child admitted to the PICU for at least 2 days with acute, new onset, or exacerbation of a critical condition.
We conducted a prospective, single-center study; administered a daily verbal response survey on NMOOPEs; stratified families by annual income (<$50 999, $51-99 000, >$100 000); and calculated daily expenditures (DEs), estimated daily budgets (DBs), and percentage of NMOOPEs (%DE/DB). We used a modified caregiver version of the Work Productivity and Activity Impairment Scale to assess the impact of PICU admission on work-related and normal life activities.
The PICU in an academic, tertiary medical center in the United States.
Patients admitted to PICU.
None.
The study included 38 families, with median length of PICU stay of 3 days (range 3-13). The mean total NMOOPE was $127 ± $107 (range $5-$511). Financial impact of DB in the 3 annual income groups ranged from 0% to 136% (median 36%), 5% to 18% (median 10%), and 4% to 39% (median 16%), respectively. Total work absenteeism for cohort was 78 days. High levels of distraction were reported in working families, and normal daily activities were interrupted or suspended.
PICU hospitalization results in a range of direct NMOOPEs of varying burden on families and additional work productivity impact. Further research to understand the array of financial implications on families and additional mitigation strategies are needed.
儿童重症监护病房（PICU）的住院可能会对家庭产生广泛影响。我们评估了至少住院 2 天且患有急性新发或恶化的危急病症的儿童的非医疗自付费用（NMOOPE）以及父母工作和正常生活的中断情况。
我们进行了一项前瞻性、单中心研究；每天通过口头应答调查评估 NMOOPE；按年收入分层（<$50999、$51-99000、>$100000）；并计算每日支出（DE）、估计每日预算（DB）和 NMOOPE 的百分比（%DE/DB）。我们使用经过修改的照顾者版工作生产力和活动障碍量表评估 PICU 入院对与工作相关和正常生活活动的影响。
美国一所学术性三级医疗中心的 PICU。
入住 PICU 的患者。
无。
该研究纳入了 38 个家庭，PICU 住院时间中位数为 3 天（范围 3-13 天）。NMOOPE 总平均值为$127 ± $107（范围$5-$511）。在这 3 个年收入组中，DB 的财务影响范围从 0%到 136%（中位数 36%）、5%到 18%（中位数 10%）和 4%到 39%（中位数 16%）。该队列的总工作缺勤天数为 78 天。有工作的家庭报告说分心程度很高，正常的日常活动被打断或暂停。
PICU 住院导致家庭面临一系列不同负担的直接 NMOOPE，以及额外的工作生产力影响。需要进一步研究以了解家庭面临的一系列财务影响，并制定额外的缓解策略。
