Professional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, P.zza S. Onofrio 4, Rome, Italy.
Professional Development, Continuing Education and Research Unit, Medical Directorate, Bambino Gesù Children's Hospital, IRCCS, P.zza S. Onofrio 4, Rome, Italy; Department of Biomedicine and Prevention, University of Rome Tor Vergata, Rome, Italy.
Aust Crit Care. 2023 May;36(3):370-377. doi: 10.1016/j.aucc.2022.01.011. Epub 2022 Mar 16.
The implementation of paediatric intensive care unit (PICU) diaries has been reported as feasible in routine care. To date no feasibility study has compared PICU healthcare providers' (HCPs) and parents' opinions on this tool.
The aim of this study is to describe the feasibility and perception of PICU diaries in an Italian PICU from the point of view of parents and HCPs.
This is a single-centre, prospective, observational study conducted in a tertiary care paediatric hospital from August 2020 to May 2021. Children admitted to the emergency department PICU, intubated, and sedated for ≥48 h were enrolled. To explore their perceptions and attitudes with the PICU diary, parents were interviewed at 30 days from their child's discharge from the PICU, whereas PICU HCPs were surveyed at the end of the study. Data were analysed as proportions for categorical variables and means and medians for continuous variables according to the distribution, whereas qualitative data were summarised in categories by two independent researchers.
Twenty families were enrolled in this study. A total of 275 daily PICU diary entries were collected. Children's median age was 9 years (interquartile range = 2-13.25), and the length of stay ranged from 6 to 39 days. PICU diary applicability was rated high by parents and HCPs (>8 on a 1-10 Likert scale). Parents and HCPs perceived PICU diaries as beneficial for communication between staff and families, for parents by expressing their emotions and for staff by becoming aware of how parents experienced their child's admission. Reported barriers were the lack of a private environment, the risk of exposure to public reading, and PICU workload.
PICU diaries were feasible and perceived as beneficial both by parents and HCPs. Future research is warranted to understand the effect of PICU diaries on post-PICU outcomes.
儿科重症监护病房（PICU）日记的实施已被报道在常规护理中是可行的。迄今为止，尚无研究比较过 PICU 医护人员（HCPs）和家长对此工具的看法。
本研究旨在从家长和 HCPs 的角度描述意大利 PICU 中 PICU 日记的可行性和感知。
这是一项单中心、前瞻性、观察性研究，于 2020 年 8 月至 2021 年 5 月在一家三级儿科医院进行。入组的患儿为因病情紧急收入 PICU、需插管和镇静 48 小时以上的患儿。为了探索他们对 PICU 日记的看法和态度，在患儿从 PICU 出院后 30 天对家长进行了访谈，而在研究结束时对 PICU HCPs 进行了调查。根据分布情况，对分类变量进行了比例分析，对连续变量进行了均值和中位数分析，而定性数据则由两名独立研究人员按类别进行了总结。
本研究共纳入 20 个家庭。共收集了 275 份每日 PICU 日记记录。患儿的中位年龄为 9 岁（四分位间距=2-13.25），住院时间为 6-39 天。家长和 HCPs 对 PICU 日记的适用性评价较高（1-10 分 Likert 量表上评分>8）。家长和 HCPs 认为 PICU 日记有利于医护人员与家属之间的沟通，有利于家长表达自己的情绪，有利于医护人员了解家长对患儿入院的感受。报告的障碍包括缺乏私人环境、暴露于公众阅读的风险和 PICU 工作量过大。
PICU 日记在家长和 HCPs 中均具有可行性，并被认为是有益的。需要进一步研究以了解 PICU 日记对 PICU 后结局的影响。
