Goodwin J, Colver A, Basu A, Crombie S, Howel D, Parr J R, McColl E, Kolehmainen N, Roberts A, Lecouturier J, Smith J, Miller K, Cadwgan J
Institute of Health and Society, Newcastle University, Newcastle Upon Tyne, UK.
Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, UK.
Child Care Health Dev. 2018 Mar;44(2):195-202. doi: 10.1111/cch.12505. Epub 2017 Aug 15.
Standing frames are used for children with cerebral palsy (CP). They may improve body structure and function (e.g., reducing risk of hip subluxation, and improving bladder and bowel function), improving activity (e.g., motor abilities) and participation (e.g., interaction with peers), but there is little evidence that they do. We aimed to identify current UK standing frame practice for children with CP and to understand stakeholder views regarding their clinical benefits and challenges to use.
Three populations were sampled: clinicians prescribing standing frames for children with CP (n = 305), professionals (health and education) working with children with CP who use standing frames (n = 155), and parents of children with CP who have used standing frames (n = 91). Questionnaires were developed by the co-applicant group and piloted with other professionals and parents of children with CP. They were distributed online via clinical and parent networks across the UK.
Prescribing practice was consistent, but achieving the prescribed use was not always possible. Respondents in all groups reported the perceived benefits of frames, which include many domains of the International Classification of Functioning Disability and Health for Children and Youth. Challenges of use are related to physical space and child-reported pain.
These survey findings provide information from key stakeholders regarding current UK standing frame practice.
站立架用于脑瘫（CP）儿童。它们可能改善身体结构和功能（例如，降低髋关节半脱位风险，改善膀胱和肠道功能），提高活动能力（例如，运动能力）和参与度（例如，与同龄人互动），但几乎没有证据表明它们确实如此。我们旨在确定英国目前针对CP儿童的站立架使用情况，并了解利益相关者对其临床益处和使用挑战的看法。
对三类人群进行了抽样：为CP儿童开具站立架处方的临床医生（n = 305）、与使用站立架的CP儿童一起工作的专业人员（健康和教育领域，n = 155）以及使用过站立架的CP儿童的家长（n = 91）。问卷由共同申请团队编制，并在其他专业人员和CP儿童家长中进行了预试验。通过英国各地的临床和家长网络在线分发问卷。
处方做法是一致的，但并非总是能够实现规定的使用。所有组的受访者都报告了站立架的感知益处，这些益处包括《儿童和青少年功能、残疾与健康国际分类》的许多领域。使用方面的挑战与物理空间和儿童报告的疼痛有关。
这些调查结果提供了关键利益相关者关于英国目前站立架使用情况的信息。
