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医疗专业人员对脑瘫儿童使用站立架的看法:一项解释性混合方法研究。

Healthcare Professionals' Perspectives on the Use of Standing Frames for Children Diagnosed With Cerebral Palsy: An Explanatory Mixed Methods Study.

机构信息

Department of Public Health, Aarhus University, Aarhus, Denmark.

Department of Clinical Research, University of Southern Denmark, Odense, Denmark.

出版信息

Child Care Health Dev. 2024 Sep;50(5):e13320. doi: 10.1111/cch.13320.

DOI:10.1111/cch.13320
PMID:39143846
Abstract

BACKGROUND

Standing frames are commonly used by healthcare professionals in their practice with children with cerebral palsy (CP) who do not have an independent standing function. A better understanding of healthcare professionals' attitudes and experiences with standing frames may impact practice and rehabilitation. Therefore, this study aimed to investigate the standing frame practice among healthcare professionals and expand their attitude and experience with the use of standing frames for children with CP.

METHODS

This is an explanatory sequential mixed methods study. A cross-sectional survey was conducted, providing quantitative data on 210 healthcare professionals' use of standing frames. The quantitative data were descriptively analysed. Subsequently, the results from the survey were followed up with five focus group interviews of healthcare professionals (n = 14). The qualitative data were analysed using thematic analysis, enabling integration between the quantitative and qualitative data.

RESULTS

When quantitative and qualitative data are integrated, expansion between the two datasets occurred. The quantitative dataset emphasised the use of GMFCS levels as a guideline for recommending standing frames, whereas the qualitative data showed that the healthcare professionals' recommendations were based on individual needs. Furthermore, the healthcare professionals expanded the quantitative data, showing that the healthcare professionals' considerations regarding age and dosage were based on clinical experience, and saw the standing frame as having many benefits.

CONCLUSION

The healthcare professionals had a child-centred approach, where the child's need for using a standing frame was assessed based on the functional level, stage of development, cognitive level and clinical assessment. All of these considerations showed that the use of standing frames for children with CP was individualised, thereby making it difficult to make unified descriptions.

摘要

背景

站立架常用于治疗脑瘫(CP)患儿的医疗保健专业人员,这些患儿没有独立站立的功能。更深入地了解医疗保健专业人员对站立架的态度和使用经验可能会影响他们的实践和康复。因此,本研究旨在调查医疗保健专业人员使用站立架的情况,并扩展他们对 CP 患儿使用站立架的态度和经验。

方法

这是一项解释性顺序混合方法研究。采用横断面调查,对 210 名医疗保健专业人员使用站立架的情况进行了定量数据分析。对定量数据进行描述性分析。随后,对调查结果进行了跟进,对 14 名医疗保健专业人员进行了 5 次焦点小组访谈。使用主题分析对定性数据进行分析,使定量和定性数据能够整合。

结果

当整合定量和定性数据时,两个数据集之间发生了扩展。定量数据集强调使用 GMFCS 水平作为推荐站立架的指南,而定性数据表明,医疗保健专业人员的推荐是基于个人需求。此外,医疗保健专业人员扩展了定量数据,表明医疗保健专业人员对年龄和剂量的考虑是基于临床经验的,并且认为站立架有很多好处。

结论

医疗保健专业人员采用以儿童为中心的方法,根据功能水平、发育阶段、认知水平和临床评估来评估儿童使用站立架的需求。所有这些考虑表明,CP 患儿使用站立架是个体化的,因此很难进行统一描述。

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