Small Serena S, Peddie David, Ackerley Christine, Hohl Corinne M, Balka Ellen
School of Communication, Simon Fraser University, Burnaby, BC, Canada.
Centre for Clinical Epidemiology & Evaluation, Vancouver, BC, Canada.
Stud Health Technol Inform. 2017;241:109-114.
Information communication technologies (ICTs) may improve health delivery by enhancing informational continuity of care and enabling secondary use of health data including public health surveillance and research. ICTs also introduce concerns related to privacy. In this paper, we examine and address this tension in the context of the development and implementation of a novel platform that will enable the documentation and communication of patient-specific ADE information, titled ActionADE. We explored privacy concerns qualitatively from the perspective of patients. Our findings will inform a series of recommendations for system design that seek to balance the need to both share and protect personal health information.
信息通信技术（ICTs）可通过加强医疗信息的连续性以及实现健康数据的二次利用（包括公共卫生监测和研究）来改善医疗服务。信息通信技术也引发了与隐私相关的担忧。在本文中，我们在一个名为ActionADE的新型平台的开发和实施背景下，审视并解决这种矛盾。我们从患者的角度定性地探讨了隐私问题。我们的研究结果将为一系列系统设计建议提供参考，这些建议旨在平衡共享和保护个人健康信息的需求。
