1 City, University of London, UK.
2 King's College Hospital, UK.
J Health Psychol. 2019 Apr;24(5):561-571. doi: 10.1177/1359105316683239. Epub 2016 Dec 1.
Non-motor symptoms of Parkinson's disease have a significant impact on quality of life. Despite this, many non-motor symptoms remain unreported by patients and consequently untreated. This study explored barriers to help-seeking using two theoretical frameworks, the Common Sense Model of illness perception and Theoretical Domains Framework. A total of 20 participants completed semi-structured interviews to explore symptom beliefs and help-seeking behaviour. Uncertainty about the relationship of non-motor symptoms to Parkinson's disease and lack of clarity around treatments were common. Embarrassment and communication difficulties were common for potentially sensitive symptoms such as sexual dysfunction. Symptom perceptions and beliefs about help-seeking acted as barriers to reporting non-motor symptoms.
帕金森病的非运动症状对生活质量有重大影响。尽管如此，许多非运动症状仍未被患者报告，因此未得到治疗。本研究使用两种理论框架（疾病认知的常识模型和理论领域框架）探讨了寻求帮助的障碍。共有 20 名参与者完成了半结构化访谈，以探讨症状信念和寻求帮助的行为。对非运动症状与帕金森病之间关系的不确定性以及治疗方法的不明确性较为常见。对于潜在敏感的症状（如性功能障碍），尴尬和沟通困难也很常见。对症状的认知和对寻求帮助的信念是报告非运动症状的障碍。
