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脊柱创伤中对经过验证的疾病特异性结局指标的需求

The Need of Validated Disease-Specific Outcome Instruments for Spine Trauma.

作者信息

Oner Cumhur, Sadiqi Said, Lehr Anne Mechteld, Schroeder Gregory D, Vaccaro Alexander R

机构信息

*Department of Orthopaedics, University Medical Center Utrecht, Utrecht, the Netherlands; and †Department of Orthopaedic Surgery, The Rothman Institute, Thomas Jefferson University, Philadelphia, PA, USA.

出版信息

J Orthop Trauma. 2017 Sep;31 Suppl 4:S33-S37. doi: 10.1097/BOT.0000000000000945.

DOI:10.1097/BOT.0000000000000945
PMID:28816873
Abstract

This article focuses on patient-reported and clinician-reported outcome measures in spine trauma care. The measurement of the quality of care and functional and health-related quality of life outcomes of spine trauma patients has become increasingly important. However, no outcome instrument is specifically designed, validated, or universally adapted for this specific patient population. Issues specific to spinal trauma patients may not be adequately addressed by the instruments that are currently used in the literature and the daily clinical practice. The AOSpine Knowledge Forum Trauma initiated a project to develop and validate such instruments for spine trauma patients. To reflect the different perspectives of patients and the treating surgeons, 2 separate tools are being developed: the Patient Reported Outcome Spine Trauma (AOSpine PROST) and Clinician Reported Outcome Spine Trauma (AOSpine CROST). These tools hold promise, as useful instruments to measure the outcomes of spine trauma patients with and without neurological deficit, making it more feasible for clinical use as well. Treating surgeons around the world are encouraged to use the AOSpine PROST and AOSpine CROST in daily clinical practice and for research purposes to create and contribute to evidence-based and patient-centered care. Using the same outcome measures that are specifically developed and validated for traumatic spine injuries will allow us to compare the outcomes of various treatments in a valid and reproducible fashion. This contributes to a reduction of the ongoing controversies and providing the best treatments for our patients.

摘要

本文聚焦于脊柱创伤护理中患者报告和临床医生报告的结局指标。脊柱创伤患者护理质量以及功能和健康相关生活质量结局的测量变得越来越重要。然而,尚无专门为这一特定患者群体设计、验证或普遍适用的结局评估工具。目前文献和日常临床实践中使用的工具可能无法充分解决脊柱创伤患者特有的问题。AOSpine创伤知识论坛发起了一个项目,为脊柱创伤患者开发并验证此类工具。为了反映患者和治疗外科医生的不同观点,正在开发两种独立的工具:患者报告的脊柱创伤结局(AOSpine PROST)和临床医生报告的脊柱创伤结局(AOSpine CROST)。这些工具很有前景,可作为测量有无神经功能缺损的脊柱创伤患者结局的有用工具,在临床应用中也更可行。鼓励世界各地的治疗外科医生在日常临床实践和研究中使用AOSpine PROST和AOSpine CROST,以创建并促进基于证据和以患者为中心的护理。使用专门为创伤性脊柱损伤开发和验证的相同结局指标,将使我们能够以有效且可重复的方式比较各种治疗的结局。这有助于减少持续存在的争议,并为我们的患者提供最佳治疗。

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Reliability and Validity of the German Version of the AO Spine Patient Reported Outcome Spine Trauma Questionnaire.
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