Bühren Katharina, Herpertz-Dahlmann Beate, Dempfle Astrid, Becker Katja, Egberts Karin M, Ehrlich Stefan, Fleischhaker Christian, von Gontard Alexander, Hahn Freia, Jaite Charlotte, Kaess Michael, Legenbauer Tanja, Renner Tobias J, Schrötter Ellen, Schulze Ulrike, Sinzig Judith, Antony Gisela, Hebebrand Johannes, Föcker Manuel
1 Department of Child and Adolescent Psychiatry, Psychosomatics and Psychotherapy, University Hospital, RWTH Aachen, Germany.
2 Institute of Medical Informatics and Statistics, Kiel University, Germany.
Z Kinder Jugendpsychiatr Psychother. 2017 Sep;45(5):393-400. doi: 10.1024/1422-4917/a000544. Epub 2017 Aug 21.
The first web-based registry for childhood and adolescent anorexia nervosa (AN) in Germany was established to systematically collect demographic and clinical data. These data as well as information on how young individuals with AN can find access to healthcare services are presented.
Patients´ data from child and adolescent psychiatry departments of 12 university hospitals and two major nonuniversity hospitals in Germany were collected between January 2015 and December 2016. All patients met the ICD-10 diagnostic criteria for (atypical) AN. Sociodemographic data, type and amount of healthcare utilization before admission, and clinical data at admission and discharge were compiled.
258 patients with a mean age of 14.7 years and a mean BMI at admission of 15.3 kg/m were included. The parents and patients had a higher educational level than the general German population. More than 80 % of the patients reported having utilized healthcare before hospitalization. The mean duration of outpatient treatment before hospitalization was 7 months.
There seem to be major barriers to specialist treatment for young patients with AN in Germany, which should be analyzed in future studies.
德国首个基于网络的儿童及青少年神经性厌食症（AN）登记处已建立，用于系统收集人口统计学和临床数据。本文展示了这些数据以及患有神经性厌食症的年轻人如何获得医疗服务的信息。
2015年1月至2016年12月期间，收集了德国12所大学医院和两所主要非大学医院儿童及青少年精神科的患者数据。所有患者均符合ICD - 10（非典型）神经性厌食症的诊断标准。整理了社会人口统计学数据、入院前医疗服务利用的类型和数量，以及入院和出院时的临床数据。
纳入了258例患者，平均年龄14.7岁，入院时平均体重指数为15.3kg/m。父母和患者的教育水平高于德国普通人群。超过80%的患者报告在住院前曾使用过医疗服务。住院前门诊治疗的平均时长为7个月。
在德国，年轻的神经性厌食症患者接受专科治疗似乎存在重大障碍，未来研究应对此进行分析。
