肺纤维化的医疗路径与患者期望
Healthcare pathway and patients' expectations in pulmonary fibrosis.
作者信息
Cottin Vincent, Bourdin Arnaud, Crestani Bruno, Prévot Grégoire, Guérin Marie, Bouquillon Benoit
机构信息
Reference Center for Rare Pulmonary Diseases, Louis Pradel Hospital and Université Claude Bernard Lyon 1, Lyon, France.
Arnaud de Villeneuve Hospital, Montpellier, France.
出版信息
ERJ Open Res. 2017 Apr 12;3(2). doi: 10.1183/23120541.00134-2016. eCollection 2017 Apr.
相似文献
1
Healthcare pathway and patients' expectations in pulmonary fibrosis.肺纤维化的医疗路径与患者期望
ERJ Open Res. 2017 Apr 12;3(2). doi: 10.1183/23120541.00134-2016. eCollection 2017 Apr.
2
Patients' perspective on pulmonary rehabilitation: experiences of European and American individuals with chronic respiratory diseases.患者对肺康复的看法：欧美慢性呼吸道疾病患者的经历
ERJ Open Res. 2018 Dec 3;4(4). doi: 10.1183/23120541.00085-2018. eCollection 2018 Oct.
3
Inhaled beclomethasone/formoterol in idiopathic pulmonary fibrosis: a randomised controlled exploratory study.吸入性倍氯米松/福莫特罗治疗特发性肺纤维化：一项随机对照探索性研究。
ERJ Open Res. 2017 Dec 14;3(4). doi: 10.1183/23120541.00100-2017. eCollection 2017 Oct.
4
An educational initiative to improve the team-based care of patients with idiopathic pulmonary fibrosis.一项旨在改善特发性肺纤维化患者团队式护理的教育倡议。
ERJ Open Res. 2018 Feb 16;4(1). doi: 10.1183/23120541.00093-2017. eCollection 2018 Jan.
5
Cytomegalovirus-associated pulmonary exacerbation in patients with cystic fibrosis.囊性纤维化患者的巨细胞病毒相关性肺部病情加重
ERJ Open Res. 2018 Jan 10;4(1). doi: 10.1183/23120541.00111-2017. eCollection 2018 Jan.
6
Pulmonary rehabilitation: Patient and healthcare professional perspective.肺康复：患者及医护人员视角
Breathe (Sheff). 2015 Sep;11(3):219-20. doi: 10.1183/20734735.007715.
7
What Patients With Idiopathic Pulmonary Fibrosis and Caregivers Want: Filling the Gaps With Patient Reported Outcomes and Experience Measures.特发性肺纤维化患者和照护者的需求：使用患者报告结局和体验测量来填补空白。
Am J Med. 2020 Mar;133(3):281-289. doi: 10.1016/j.amjmed.2019.08.032. Epub 2019 Sep 11.
8
Assessing quality of life of idiopathic pulmonary fibrosis patients: the INSTAGE study.评估特发性肺纤维化患者的生活质量：INSTAGE研究。
Breathe (Sheff). 2019 Jun;15(2):144-146. doi: 10.1183/20734735.0016-2019.
9
Economic consequences of idiopathic pulmonary fibrosis in Denmark.丹麦特发性肺纤维化的经济后果。
ERJ Open Res. 2018 May 25;4(2). doi: 10.1183/23120541.00045-2017. eCollection 2018 Apr.
10
Is idiopathic pulmonary fibrosis a cancer-like disease? Transcriptome analysis to fuel the debate.特发性肺纤维化是一种类似癌症的疾病吗？转录组分析引发争论。
ERJ Open Res. 2019 Feb 1;5(1). doi: 10.1183/23120541.00157-2018. eCollection 2019 Feb.
引用本文的文献
1
Patients' and healthcare professionals' perspectives on the idiopathic pulmonary fibrosis care journey: a qualitative study.患者和医疗保健专业人员对特发性肺纤维化护理之旅的看法：一项定性研究。
BMC Pulm Med. 2021 Mar 18;21(1):93. doi: 10.1186/s12890-021-01431-8.
2
Gaps in care of patients living with pulmonary fibrosis: a joint patient and expert statement on the results of a Europe-wide survey.肺纤维化患者护理中的差距：患者与专家关于全欧洲范围调查结果的联合声明
ERJ Open Res. 2019 Oct 21;5(4). doi: 10.1183/23120541.00124-2019. eCollection 2019 Oct.
3
An educational initiative to improve the team-based care of patients with idiopathic pulmonary fibrosis.一项旨在改善特发性肺纤维化患者团队式护理的教育倡议。
ERJ Open Res. 2018 Feb 16;4(1). doi: 10.1183/23120541.00093-2017. eCollection 2018 Jan.
本文引用的文献
1
Understanding the priorities for women diagnosed with lymphangioleiomyomatosis: a patient perspective.从患者角度理解淋巴管平滑肌瘤病女性患者的优先事项
ERJ Open Res. 2016 Apr 21;2(2). doi: 10.1183/23120541.00102-2015. eCollection 2016 Apr.
2
The lived experience with idiopathic pulmonary fibrosis: a qualitative study.特发性肺纤维化的生活体验：一项定性研究。
Eur Respir J. 2016 May;47(5):1472-80. doi: 10.1183/13993003.01566-2015. Epub 2016 Feb 4.
3
European IPF Patient Charter: unmet needs and a call to action for healthcare policymakers.欧洲特发性肺纤维化患者宪章：医疗保健政策制定者的未满足需求和行动呼吁。
Eur Respir J. 2016 Feb;47(2):597-606. doi: 10.1183/13993003.01204-2015. Epub 2015 Nov 19.
4
An Official ATS/ERS/JRS/ALAT Clinical Practice Guideline: Treatment of Idiopathic Pulmonary Fibrosis. An Update of the 2011 Clinical Practice Guideline.美国胸科学会/欧洲呼吸学会/日本呼吸学会/拉丁美洲胸科学会特发性肺纤维化临床实践指南：治疗。对 2011 年临床实践指南的更新。
Am J Respir Crit Care Med. 2015 Jul 15;192(2):e3-19. doi: 10.1164/rccm.201506-1063ST.
5
A new era in idiopathic pulmonary fibrosis: considerations for future clinical trials.特发性肺纤维化的新纪元：对未来临床试验的思考。
Eur Respir J. 2015 Jul;46(1):243-9. doi: 10.1183/09031936.00200614. Epub 2015 Apr 21.
6
Perceptions, experiences and needs of patients with idiopathic pulmonary fibrosis.特发性肺纤维化患者的认知、经历与需求
J Adv Nurs. 2015 May;71(5):1055-65. doi: 10.1111/jan.12587. Epub 2014 Dec 23.
7
Physicians' and patients' expectations of therapies for pulmonary arterial hypertension: where do they meet?医生和患者对肺动脉高压治疗的期望：二者的契合点在哪里？
Eur Respir Rev. 2014 Dec;23(134):458-68. doi: 10.1183/09059180.00007514.
8
My Journey through idiopathic pulmonary fibrosis.
Ann Am Thorac Soc. 2014 Jun;11(5):833-5. doi: 10.1513/AnnalsATS.201403-132OR.
9
"Getting stuck with LAM": patients perspectives on living with lymphangioleiomyomatosis."与 LAM 纠缠不清"：淋巴管平滑肌瘤病患者的生存体验。
Health Qual Life Outcomes. 2014 May 21;12:79. doi: 10.1186/1477-7525-12-79.
10
Rare lung disease and orphan drug development.罕见肺部疾病与孤儿药研发。
Lancet Respir Med. 2013 Aug;1(6):479-87. doi: 10.1016/S2213-2600(13)70085-7. Epub 2013 Jun 25.
Zotero 插件