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将儿童的声音置于临床试验研究的中心位置:一种新的规划、协作和反思模式。

Positioning Children's Voice in Clinical Trials Research: A New Model for Planning, Collaboration, and Reflection.

机构信息

1 University of Winchester, Winchester, United Kingdom.

2 The Open University, Milton Keynes, United Kingdom.

出版信息

Qual Health Res. 2017 Dec;27(14):2162-2176. doi: 10.1177/1049732317726760. Epub 2017 Aug 24.

Abstract

Following the United Nations Convention on the Rights of the Child, there has been considerable growth in research with children about health and services that affect them. Creative methods to engage with children have also been developed. One area where progress has been slower is the inclusion of children's perspectives in qualitative research in the context of clinical trials or feasibility studies. Addressing this gap, this article discusses experiences of, and reflections on, the process of researching children's views as part of a clinical feasibility study. The article considers what worked well and highlights remaining dilemmas. A new continuum of children's engagement in research is presented, designed to assist researchers to make explicit the contingent demands on their research, and to suggest a range of techniques from within the broader fields of health, childhood studies, and education research that could be used to forward qualitative research in clinical contexts.

摘要

根据《联合国儿童权利公约》,关于儿童健康和影响其健康的服务的研究有了相当大的增长。此外,还开发了一些创新性的方法来让儿童参与研究。在临床试验或可行性研究中纳入儿童观点的定性研究方面进展较为缓慢。为了弥补这一差距,本文讨论了在临床可行性研究中研究儿童观点的经验和反思。本文考虑了哪些方面运作良好,并强调了仍然存在的困境。提出了一个新的儿童参与研究的连续体,旨在帮助研究人员明确研究对他们的附带要求,并从健康、儿童研究和教育研究等更广泛领域中提出一系列可用于推进临床背景下定性研究的技术。

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