Burke Shanna L, Wagner Eric, Marolda Heather, Quintana Jordan E, Maddux Marlaina
Florida International University, USA.
J Intellect Disabil. 2019 Mar;23(1):97-116. doi: 10.1177/1744629517726209. Epub 2017 Aug 29.
In Florida, the Agency for Persons with Disabilities provides waivers for adults with the following types of disabilities: intellectual disability, autism spectrum disorder, cerebral palsy, spina bifida, Down syndrome, and Prader-Willi syndrome. This review examined the peer-reviewed literature to indicate and assess the common needs for individuals with intellectual and developmental disabilities. Current models of service delivery, the efficacy of these services, and remaining gaps in the need fulfillment of individuals within the six diagnostic categorizations of interest were examined. Severity level within each diagnostic category was plotted on a matrix according to whether the needs of individuals were minimal, moderate, severe, or universal. The study found that sexual health education, socialization, and adult-focused medical care are universal needs among the six conditions. The study indicates that health-care professionals must work toward addressing the many unmet needs in comprehensive life span care services for adult individuals with neurodevelopmental disorders.
在佛罗里达州，残疾人事务局为患有以下类型残疾的成年人提供豁免：智力残疾、自闭症谱系障碍、脑瘫、脊柱裂、唐氏综合征和普拉德-威利综合征。本综述查阅了同行评议文献，以指出并评估智力和发育障碍患者的共同需求。研究了当前的服务提供模式、这些服务的效果，以及在六个感兴趣的诊断类别中个体需求满足方面仍然存在的差距。根据个体需求是极少、中等、严重还是普遍，将每个诊断类别的严重程度绘制在一个矩阵上。研究发现，性健康教育、社交以及以成人为重点的医疗护理是这六种情况中的普遍需求。该研究表明，医疗保健专业人员必须努力满足成年神经发育障碍患者在全面生命周期护理服务方面许多未得到满足的需求。
