Sundin Karin, Pusa Susanna, Jonsson Carin, Saveman Britt-Inger, Östlund Ulrika
Department of Nursing, Umeå University, Umeå, Sweden.
Centre for Research & Development, Uppsala University/Region Gävleborg, Gävle, Sweden.
Scand J Caring Sci. 2018 Jun;32(2):707-714. doi: 10.1111/scs.12501. Epub 2017 Aug 29.
The whole family is affected when a person suffers from stroke, but few studies have focused on families' expectations following the stroke.
The aim of this study was to illuminate what persons with stroke and their family members talk about in Family Health Conversations (FamHCs) with focus on the future and how nurses leading these conversations apprehended the families' future shown in closing letters based on these conversations.
In this study, seven families with a member ≤65 years who had suffered a stroke participated in FamHC in their homes after the person with stroke had been discharged from the rehabilitation clinic. The FamHC comprised a series of three conversations conducted every other week and a closing letter sent by the nurses to the family to conclude the series. In this study, the third conversations were recorded and they and the closing letters were transcribed and analysed using qualitative content analysis.
The family members including the persons with stroke were found to be able to tell their stories and express their feelings, worries, losses, hopes and wishes for the future within the context of the Family Health Conversations. Support within the family was highlighted as essential to the satisfactory management of future situations.
The persons with stroke and their belonging family members' vision of the future was reflected over in the light of theories about beliefs, possible selves, hope and suffering, and the findings highlight the need for broader use of family conversations to support persons with stroke and their families to manage the future.
当一个人中风时,整个家庭都会受到影响,但很少有研究关注中风后家庭的期望。
本研究的目的是阐明中风患者及其家庭成员在家庭健康对话(FamHCs)中谈论的关于未来的内容,以及主持这些对话的护士如何理解基于这些对话的结束语中所呈现的家庭的未来。
在本研究中,七名家中有一名65岁及以下中风成员的家庭,在中风患者从康复诊所出院后,在家中参与了家庭健康对话。家庭健康对话包括每隔一周进行的一系列三次对话,以及护士发给家庭的结束语以结束该系列对话。在本研究中,记录了第三次对话,并对其以及结束语进行转录,并使用定性内容分析法进行分析。
发现包括中风患者在内的家庭成员能够在家庭健康对话的背景下讲述他们的故事,并表达他们的感受、担忧、损失、对未来的希望和愿望。家庭内部的支持被强调为对未来情况进行满意管理的关键。
中风患者及其所属家庭成员对未来的愿景根据关于信念、可能的自我、希望和痛苦的理论得到了反映,研究结果强调需要更广泛地利用家庭对话来支持中风患者及其家庭应对未来。