Bogossian Aline, King Gillian, Lach Lucyna M, Currie Melissa, Nicholas David, McNeill Ted, Saini Michael
a Centre for Research on Children and Families, School of Social Work , McGill University , Montreal , Canada.
b Department of Occupational Science and Occupational Therapy, Bloorview Research Institute , University of Toronto , Toronto , Canada.
Disabil Rehabil. 2019 Jan;41(1):110-124. doi: 10.1080/09638288.2017.1370497. Epub 2017 Aug 30.
In the past thirty years, theoretical and empirical scholarship on father involvement has emerged and firmly established itself. Efforts to define, measure, and explore outcomes related to father involvement in the context of childhood neurodisability are evident but less well established. The purpose of this study was to systematically map empirical studies on father involvement in the context of childhood neurodisability in order to delineate the current state of research and to highlight profitable directions for future research.
A rigorous scoping review method was used to select and analyze empirical studies published between the years 1988 and 2016 in order to systematically map research findings about fathers' affective, behavioral, and cognitive involvement.
Fifty-four (n = 54) studies (quantitative n = 47 and qualitative n = 7) met inclusion criteria associated with three levels of review. Four main trends emerged: (a) paternal "stress" is a main concept of interest; (b) comparison of mothers and fathers on affective and cognitive involvement; (c) lack of a focus on fathers' behavioral involvement, and (d) the absence of research designs that allow for examination of fathers' unique perspectives.
Fathers are generally underrepresented in research in the context of childhood neurodisability. While there is a lack of depth in this area of research, granular analyses revealed important and unique differences about fathers' parenting experiences. Recommendations for research and practice are provided. Implications for rehabilitation Fathers are underrepresented in the parenting in childhood neurodisability literature. Fathers who report feeling competent in parenting and connected to their child also report less parenting distress and more satisfaction in their couple relationship and family environment. Rehabilitation and allied health professionals should include fathers in parenting/family assessments. Manifestation of distress may differ among family members. Rehabilitation and allied health professionals should offer individualized care that is attuned to the needs of all family members.
在过去三十年中，关于父亲参与的理论和实证研究不断涌现并稳固发展。在儿童神经残疾背景下，界定、衡量和探究与父亲参与相关的结果的努力有目共睹，但尚未完全确立。本研究旨在系统梳理关于儿童神经残疾背景下父亲参与的实证研究，以描绘当前研究现状，并突出未来研究的有益方向。
采用严格的范围综述方法，选取并分析1988年至2016年间发表的实证研究，以便系统梳理有关父亲情感、行为和认知参与的研究结果。
54项研究（定量研究47项，定性研究7项）符合与三个审查层面相关的纳入标准。出现了四个主要趋势：（a）父亲的“压力”是主要关注概念；（b）对父母在情感和认知参与方面的比较；（c）缺乏对父亲行为参与的关注；（d）缺乏允许考察父亲独特视角的研究设计。
在儿童神经残疾背景的研究中，父亲通常未得到充分体现。虽然该研究领域缺乏深度，但细致分析揭示了父亲育儿经历的重要且独特的差异。提供了研究和实践建议。对康复的启示 在儿童神经残疾文献中，父亲在育儿方面未得到充分体现。报告在育儿方面感到胜任且与孩子关系紧密的父亲，其育儿困扰也较少，对夫妻关系和家庭环境的满意度更高。康复及相关健康专业人员应将父亲纳入育儿/家庭评估。痛苦的表现可能因家庭成员而异。康复及相关健康专业人员应提供符合所有家庭成员需求的个性化护理。
