Scripps Emma, Sutherland Daniel, Langdon Peter E, Hastings Richard P, Gray Kylie M
Centre for Research in Intellectual and Developmental Disabilities (CIDD), University of Warwick, Coventry, UK.
Intellectual Disabilities Research Institute (IDRIS), University of Birmingham, Birmingham, UK.
J Appl Res Intellect Disabil. 2025 Jan;38(1):e70004. doi: 10.1111/jar.70004.
This review aimed to synthesise the literature about interventions for parents of adolescents with intellectual disability, including parental experience of receiving interventions and intervention effectiveness.
Eligible interventions aimed to improve parenting skills and/or parent-adolescent relationships, adolescent behavioural/emotional problems and/or parent well-being. ASSIA, EMBASE, Medline, PsycINFO and Web of Science were last searched on 11 July 2024. The TIDieR checklist and the MMAT were used for quality appraisal. A narrative synthesis was conducted. (Pre-registration: PROSPERO CRD42022384409).
Twelve studies with 1041 families were included. Intervention descriptions were detailed; however, study quality was mixed. Nearly all studies reported the intervention was associated with positive effects on parenting, parent-adolescent relationships, adolescent behaviour/emotional problems or parent well-being. Three randomised controlled trials (RCTs) offer the strongest evidence but are limited in quality. All studies investigating parent experiences reported positive responses.
High-quality studies (e.g., RCTs) are needed to enable conclusions about efficacy and effectiveness.
本综述旨在综合有关针对智障青少年家长的干预措施的文献，包括家长接受干预的体验及干预效果。
符合条件的干预措施旨在提高育儿技能和/或改善亲子关系、解决青少年行为/情绪问题和/或提升家长幸福感。ASSIA、EMBASE、Medline、PsycINFO和Web of Science数据库于2024年7月11日进行了最新检索。使用TIDieR清单和MMAT进行质量评估。进行了叙述性综合分析。（预注册：PROSPERO CRD42022384409）。
纳入了12项研究，涉及1041个家庭。干预措施描述详细，但研究质量参差不齐。几乎所有研究都报告称，干预措施对育儿、亲子关系、青少年行为/情绪问题或家长幸福感有积极影响。三项随机对照试验提供了最有力的证据，但质量有限。所有调查家长体验的研究均报告了积极反馈。
需要高质量的研究（如随机对照试验）才能得出关于疗效和效果的结论。
