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治疗后患者为新诊断的食管癌患者提供同伴建议。

Peer advice giving from posttreatment to newly diagnosed esophageal cancer patients.

作者信息

Graham-Wisener L, Dempster M

机构信息

Marie Curie Hospice Belfast, Marie Curie Cancer Care.

School of Psychology, Queen's University Belfast, Belfast, Northern Ireland, UK.

出版信息

Dis Esophagus. 2017 Oct 1;30(10):1-7. doi: 10.1093/dote/dox089.

Abstract

The benefits of peer support in cancer care include the sharing of information and experience, supporting adjustment by providing an illness trajectory which cancer patients can use to prepare for their own cancer journey. Information from peers is prioritized by esophageal cancer patients, yet the content of this experiential information is not well understood. The purpose of this study is to understand the content of peer advice giving from posttreatment to newly diagnosed esophageal cancer patients. Esophageal cancer survivors (n = 23) at median 67-months postdiagnosis completed a single open-ended survey item which asked for advice they would give to individuals newly diagnosed with esophageal cancer on how to cope emotionally with the cancer journey (including adjusting to life after treatment). Transcripts were assessed using qualitative content analysis, with five categories of advice identified: social support, psychological approach, realistic expectations, support from healthcare professionals and self-care. The categories of advice reported were distinct from information needs prioritized by clinicians. This study demonstrates that experiential information is accessible and has the potential to identify neglected information and supportive care needs, and may have a potential use in delivery of psychological support to newly diagnosed patients.

摘要

同伴支持在癌症护理中的益处包括信息和经验的分享,通过提供癌症患者可用于为自身癌症旅程做准备的疾病轨迹来支持调整。食管癌患者优先重视同伴提供的信息,但这种经验性信息的内容尚未得到充分理解。本研究的目的是了解治疗后食管癌幸存者向新诊断的食管癌患者提供建议的内容。中位诊断后67个月的23名食管癌幸存者完成了一项开放式调查项目,该项目询问他们会就如何在情感上应对癌症旅程(包括适应治疗后的生活)向新诊断为食管癌的患者提供哪些建议。使用定性内容分析法对访谈记录进行评估,确定了五类建议:社会支持、心理方法、现实期望、医疗保健专业人员的支持和自我护理。报告的建议类别与临床医生确定的信息需求不同。本研究表明,经验性信息是可获取的,有潜力识别被忽视的信息和支持性护理需求,并且可能在为新诊断患者提供心理支持方面具有潜在用途。

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