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[玛吉在东京的人类支持现在何处的意义?以及癌症之旅]

[Maggie's Tokyo's Human Support the Meaning of Where Now ? And Cancer Journey].

作者信息

Takada Yoshie

机构信息

maggie's tokyo.

出版信息

Gan To Kagaku Ryoho. 2017 Aug;44(8):640-643.

Abstract

The landscape architect Maggie Jencks felt that she wanted a place to "get herself back" when her breast cancer recurred and was told that she only had a few months remaining. Mr. Charles Jencks, her husband who fulfilled her wishes, opened the first "Maggie's Cancer Caring Centre" in Edinburgh in 1996. Masako Akiyama, the chief of Maggie's Tokyo found out about Maggie's Centre when she listened to a presentation from Andrew Anderson, the director of Maggie's Edinburgh, at an International Nursing Seminar in 2008. Masako Akiyama realized that support to "get back ones own power" is one of the important things. In addition, she felt that providing a "place" and "support" to patients and their families were predominant elements. When someone is diagnosed with cancer, the person gets a great shock and feels loneliness. Suddenly the person feels tomorrow will not come, every day becomes uncertain. These feelings affect their whole life such as enrollment, employment, loss of role, and change. They also affect people such as family, friends, colleagues, besides the person. Due to changes in treatment, the existential troubles that have been prolonged after the completion of the initial treatment appear. Cancer survivorship is called "Cancer journey"in the Maggie's flow. The cancer journey suddenly starts, when a person is diagnosed with cancer", without direction or a plan. Additionally, the "heart"is often left behind. To undertake the cancer journey, there are a lot of forks in the road that cannot turn back and they are urged to choose their path. "Where now ?"is a phrase in a pamphlet from Maggie's Centre, and the phrase shows that staff of Maggie's Centre can help cancer patient to recognize where they are in their Cancer journey. The Maggie's Centre has 2 important pillars: "building/environment"and "human support". As a "homely place" between hospital and my house, the building is "a healing space". Human support is provided free of charge and patients and families can stop by without reservation. Experienced cancer specialists and medical staff are always available. Unlike previous supportive methods for patients such as giving information and helping to solve problems, Maggie's emphasizes the 3 points of "snuggling up to each individual", "equal footing" and "to cherish their likeness empowerment". By talking to Maggie's medical professionals, patients and families can find their "heart" and regain their original strength.

摘要

景观设计师玛吉·詹克斯在乳腺癌复发且被告知仅余几个月生命时,觉得自己需要一个能“找回自我”的地方。她的丈夫查尔斯·詹克斯先生成全了她的心愿,于1996年在爱丁堡开办了第一家“玛吉癌症关爱中心”。玛吉东京中心的负责人秋山雅子在2008年的一次国际护理研讨会上聆听了玛吉爱丁堡中心主任安德鲁·安德森的演讲后,了解到了玛吉中心。秋山雅子意识到,给予“重获自身力量”的支持是重要之事之一。此外,她觉得为患者及其家人提供一个“场所”和“支持”是关键要素。当某人被诊断出患有癌症时,会遭受巨大冲击并感到孤独。突然之间,这个人觉得明天不会到来,每一天都充满不确定性。这些感受会影响他们的整个人生,比如入学、就业、角色丧失以及生活变化。它们还会影响除患者本人之外的家人、朋友、同事等。由于治疗方式的改变,初始治疗结束后长期存在的生存困境显现出来。在玛吉中心的理念中,癌症幸存者的历程被称作“抗癌之旅”。“抗癌之旅在一个人被诊断出患有癌症时突然开启”,没有方向也没有计划。此外,“心灵”常常被抛诸脑后。要踏上抗癌之旅,有许多无法回头的岔路,患者被迫做出选择。“何去何从?”是玛吉中心一本宣传册中的一句话,这句话表明玛吉中心的工作人员能帮助癌症患者认清自己在抗癌之旅中的位置。玛吉中心有两大重要支柱:“建筑/环境”和“人文支持”。作为医院和家之间的“温馨之所”,建筑是“一个治愈空间”。人文支持免费提供,患者及其家人无需预约即可前来。经验丰富的癌症专家和医护人员随时待命。与以往向患者提供信息和帮助解决问题等支持方式不同,玛吉中心强调“贴近每一个人”“平等相待”和“珍视他们的相似之处并赋予力量”这三点。通过与玛吉中心的医疗专业人员交流,患者及其家人能够找到自己的“心灵”并重拾原有的力量。

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