Department of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Centre for Person-centred Care, (GPCC), Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Acta Neurol Scand. 2018 Jan;137(1):99-104. doi: 10.1111/ane.12815. Epub 2017 Sep 4.
Subarachnoid haemorrhage (SAH) has high mortality and morbidity among survivors. SAH mainly affects young people and may result in long-term disabilities such as decreased Health-related Quality of Life (HRQoL), mental health and cognitive function. The aim of this study was to investigate the life situation 5 years after a SAH including physical/emotional status, participation and HRQoL.
MATERIALS & METHODS: In this cross-sectional descriptive study, a mail survey was sent to all persons treated at a neurosurgery unit in Gothenburg, Sweden, for non-traumatic SAH in 2009-2010, approximately 5 years post-SAH. The survey included questions regarding HRQoL; EuroQol 5-Dimensions (EQ-5D), the impact of the SAH; Stroke Impact Scale (SIS), Occupational Gaps Questionnaire and participation in society; Impact of Participation and Autonomy (IPA).
Forty-two 5 year survivors were sent the survey, of whom 26 (62%) responded (59 years old, range 33-85). The participants had generally low HRQoL and scored low in the domain of anxiety and depression. Many reported problems with emotions, fatigue, memory and executive function, but few problems with physical condition. However, nearly all participants reported to have an acceptable level of participation and 64% were independent in their daily life.
In this 5-year follow-up after SAH, the participants reported to have a greater number of hidden disabilities compared to physical problems, whereas most had acceptable participation in society. A yearly follow-up after a SAH could be suggested aiming to improving the cognitive and mental health.
蛛网膜下腔出血（SAH）在幸存者中具有较高的死亡率和发病率。SAH 主要影响年轻人，可能导致长期残疾，如健康相关生活质量（HRQoL）下降、心理健康和认知功能受损。本研究旨在调查 SAH 后 5 年的生活状况，包括身体/情绪状况、参与度和 HRQoL。
在这项横断面描述性研究中，对 2009-2010 年在瑞典哥德堡神经外科接受非创伤性 SAH 治疗的所有患者进行了邮件调查，大约在 SAH 后 5 年进行。调查包括关于 HRQoL 的问题；欧洲五维健康量表（EQ-5D）、SAH 影响量表（SIS）、职业差距问卷和参与社会的问题；参与和自主度影响（IPA）。
共有 42 名 5 年幸存者收到了调查，其中 26 名（62%）做出了回应（59 岁，范围 33-85 岁）。参与者的 HRQoL 普遍较低，焦虑和抑郁领域得分较低。许多人报告存在情绪、疲劳、记忆和执行功能问题，但身体状况问题较少。然而，几乎所有参与者都报告有可接受的参与度，64%的人在日常生活中独立。
在 SAH 后 5 年的随访中，与身体问题相比，参与者报告存在更多的隐性残疾，但大多数人在社会参与方面都有可接受的水平。建议每年对 SAH 进行随访，以改善认知和心理健康。
