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癌症患者家庭照顾者对照顾挑战的认知:一项定性研究。

Perceptions of family caregivers of cancer patients about the challenges of caregiving: a qualitative study.

作者信息

Nemati Shahnaz, Rassouli Maryam, Ilkhani Mahnaz, Baghestani Ahmad Reza

机构信息

Nursing & Midwifery School, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

Pediatric Nursing Department, Nursing & Midwifery School, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

出版信息

Scand J Caring Sci. 2018 Mar;32(1):309-316. doi: 10.1111/scs.12463. Epub 2017 Sep 4.

Abstract

BACKGROUND

The experience of caring for a family member with cancer is associated with several care-related problems and challenges for the caregiver. The comprehensive and in-depth understanding of the trials and tribulations of caregiving can be a step towards resolving the problems faced by family caregivers of these patients.

AIM

The present study aimed to explore challenges faced by Iranian family caregivers of cancer patients.

MATERIALS AND METHODS

The present qualitative study was conducted through in-depth semi-structured interviews held with 21 family caregivers of cancer patients selected through purposive sampling. Interviews continued until saturation of data. All interviews were recorded, transcribed and analysed through conventional content analysis.

FINDING

The codes extracted from interviews produced four main themes, including 'confusion', 'uncertainty', 'disintegration' and 'setback', which collectively caused suffering for family caregivers.

CONCLUSION

Care provided in an atmosphere of suffering and discontent diminishes caregiver's quality of life and quality of patient care. Health planners should therefore consider the challenges and sufferings faced by family caregivers and should seek to obviate them through appropriate plans.

摘要

背景

照顾癌症家庭成员的经历会给照顾者带来一些与护理相关的问题和挑战。全面深入地了解护理工作的艰辛,可能是解决这些患者家庭照顾者所面临问题的第一步。

目的

本研究旨在探讨伊朗癌症患者家庭照顾者所面临的挑战。

材料与方法

本定性研究通过对21名通过目的抽样选取的癌症患者家庭照顾者进行深入的半结构化访谈来开展。访谈持续进行直至数据饱和。所有访谈均进行录音、转录,并通过常规内容分析法进行分析。

结果

从访谈中提取的编码产生了四个主要主题,包括“困惑”“不确定”“瓦解”和“挫折”,这些共同给家庭照顾者带来了痛苦。

结论

在痛苦和不满的氛围中提供的护理会降低照顾者的生活质量和患者护理质量。因此,卫生规划者应考虑家庭照顾者所面临的挑战和痛苦,并应设法通过适当的计划消除这些问题。

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