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通过共同生产视角重塑医疗服务(RheLaunCh):一项关于美国和荷兰医疗与社会服务影响慢性阻塞性肺疾病(COPD)和慢性心力衰竭(CHF)患者健康与福祉机制的混合方法评估研究方案

'Reframing Healthcare Services through the Lens of Co-Production' (RheLaunCh): a study protocol for a mixed methods evaluation of mechanisms by which healthcare and social services impact the health and well-being of patients with COPD and CHF in the USA and The Netherlands.

作者信息

Hesselink Gijs, Johnson Julie, Batalden Paul, Carlson Michelle, Geense Wytske, Groenewoud Stef, Jones Sylvester, Roy Brita, Sansone Christina, Wolf Judith R L M, Bart Bradley, Wollersheim Hub

机构信息

Radboud Institute for Health Sciences, IQ Healthcare, Radboud University Medical Center, Nijmegen, The Netherlands.

Feinberg School of Medicine, Northwestern University, Chicago, Illinois, USA.

出版信息

BMJ Open. 2017 Sep 7;7(9):e017292. doi: 10.1136/bmjopen-2017-017292.

Abstract

INTRODUCTION

The USA lags behind other high-income countries in many health indicators. Outcome differences are associated with differences in the relative spending between healthcare and social services at the national level. The impact of the ratio and delivery of social and healthcare services on the individual patient's health is however unknown. '' (RheLaunCh) will be a cross-Atlantic comparative study of the mechanisms by which healthcare and social service delivery may impact patient health with chronic conditions. Insight into these mechanisms is needed to better and cost-effectively organise healthcare and social services.

METHODS

We designed a mixed methods study to compare the socioeconomic background, needs of and service delivery to patients with congestive heart failure and chronic obstructive pulmonary disease in the USA and the Netherlands. We will conduct: (1) a literature scan to compare national and regional healthcare and social service systems; (2) a retrospective database study to compare patient's socioeconomic and clinical characteristics and the service use and spending at the national, regional and hospital level; (3) a survey to compare patient perceived quality of life, receipt and experience of service delivery and ability of these services to meet patient needs; and (4) multiple case studies to understand what patients need to better govern their quality of life and how needs are met by services.

ETHICS AND DISSEMINATION

Ethics approval was granted by the ethics committee of the Radboud University Medical Center (2016-2423) in the Netherlands and by the Human Subjects Research Committee of the Hennepin Health Care System, Inc. (HSR #16-4230) in the USA. Multiple approaches will be used for dissemination of results, including (inter)national research presentations and peer-reviewed publications. A website will be established to support the development of a community of practice.

摘要

引言

美国在许多健康指标方面落后于其他高收入国家。结果差异与国家层面医疗保健和社会服务相对支出的差异有关。然而,社会和医疗服务的比例及提供方式对个体患者健康的影响尚不清楚。“RheLaunCh”将是一项跨大西洋的比较研究,旨在探讨医疗保健和社会服务提供可能影响慢性病患者健康的机制。需要深入了解这些机制,以便更好且经济高效地组织医疗保健和社会服务。

方法

我们设计了一项混合方法研究,以比较美国和荷兰充血性心力衰竭和慢性阻塞性肺疾病患者的社会经济背景、需求及服务提供情况。我们将开展:(1)文献扫描,以比较国家和地区的医疗保健及社会服务系统;(2)回顾性数据库研究,以比较患者的社会经济和临床特征以及国家、地区和医院层面的服务使用情况及支出;(3)一项调查,以比较患者感知的生活质量、服务提供的接受情况和体验以及这些服务满足患者需求的能力;(4)多个案例研究,以了解患者为更好地掌控生活质量需要什么以及服务如何满足这些需求。

伦理与传播

荷兰拉德堡德大学医学中心伦理委员会(2016 - 2423)和美国亨内平医疗保健系统公司人类研究委员会(HSR #16 - 4230)已批准伦理审查。将采用多种方法传播研究结果,包括(国际)研究报告和同行评审出版物。将建立一个网站以支持实践社区的发展。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/17db/5595202/21809da72a0b/bmjopen-2017-017292f01.jpg

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