Kvåle K, Synnes O
VID Specialized University, Bergen, Fyllingsdalen, Norway.
Centre of Diaconia and Professional Practice, VID Specialized University, Oslo, Norway.
Eur J Cancer Care (Engl). 2018 Jan;27(1). doi: 10.1111/ecc.12770. Epub 2017 Sep 11.
Chemotherapy, radiotherapy, hormone therapy and immune therapy have made many cancers chronic, potential curable diseases rather than inevitably fatal, but the treatments are often both mentally and physically stressful even if the side effects varies. The right use of palliative chemotherapy is a complex issue and there are many aspects to take into consideration. The aim of the study was to gain insight into the illness narratives of cancer patients, from the day they suspected that something was wrong up to the present day where they are living with incurable cancer, undergoing life-prolonging chemotherapy. Thirteen narrators were included. They were all cancer patients on chemotherapy with the intention of prolonging life (informed by their oncologist) in an outpatient's clinic in Norway. Narrative analyse of their illness stories was applied. The main findings showed that the narrators considered their lives worth living in spite of the treatment. They seemed to take control and build a new life on "what was left after the storm," and described how they found meaning living in the tension between life and death.
化疗、放疗、激素疗法和免疫疗法已使许多癌症成为慢性的、有可能治愈的疾病,而非不可避免地致命,但这些治疗方法往往在精神和身体上都给人带来压力,即便副作用因人而异。恰当使用姑息性化疗是一个复杂的问题,有许多方面需要考虑。该研究的目的是深入了解癌症患者的患病经历,从他们怀疑身体有问题的那天起,直至如今他们患有无法治愈的癌症并正在接受延长生命的化疗。研究纳入了13名讲述者。他们都是挪威一家门诊诊所中接受化疗以延长生命(由肿瘤医生告知)的癌症患者。对他们的患病故事进行了叙事分析。主要研究结果表明,尽管接受了治疗,但讲述者们认为自己的生命值得活下去。他们似乎掌控了局面,并在“暴风雨过后留下的东西”的基础上建立了新的生活,还描述了他们如何在生与死的紧张状态中找到生活的意义。