Pinzón-Iregui María C, Ibanez Gladys, Beck-Sagué Consuelo, Halpern Mina, Mendoza Rosa M
1 Robert Stempel College of Public Health and Social Work, Florida International University, Miami, FL, USA.
2 Clínica de Familia La Romana, La Romana, Dominican Republic.
J Int Assoc Provid AIDS Care. 2017 Nov/Dec;16(6):579-587. doi: 10.1177/2325957417729749. Epub 2017 Sep 12.
With the introduction of combination antiretroviral therapy (ART) worldwide, youth with perinatal HIV infection are increasingly surviving childhood and transitioning to adult care. Although a normal life span is anticipated posttransition, successful transition to adult HIV care has proven difficult, with worse outcomes posttransition than in pediatric and adult care. This study is a qualitative analysis of data from 4 focus groups of pre- and posttransition patients, caregivers, and healthcare providers in the Dominican Republic at an institution that provides comprehensive treatment including ART for HIV-infected persons of all ages. All groups discussed the problems and challenges that patients, caregivers, and providers experience while living the transition process and beyond. Five major themes emerged: the trauma of transition itself, ART adherence, experience and impact of stigma, social supports and barriers, and recommendations for improving outcomes. Participants' insights offered approaches for a versatile structured transition process.
随着联合抗逆转录病毒疗法（ART）在全球范围内的引入，围产期感染艾滋病毒的青少年越来越多地度过童年并过渡到成人护理阶段。尽管预计过渡后能拥有正常寿命，但事实证明，成功过渡到成人艾滋病毒护理十分困难，过渡后的结果比儿科和成人护理更差。本研究是对多米尼加共和国一家为所有年龄段艾滋病毒感染者提供包括抗逆转录病毒疗法在内的综合治疗机构的4个焦点小组的过渡前后患者、护理人员和医疗服务提供者的数据进行的定性分析。所有小组都讨论了患者、护理人员和提供者在经历过渡过程及之后所遇到的问题和挑战。出现了五个主要主题：过渡本身的创伤、抗逆转录病毒疗法的依从性、耻辱感的经历和影响、社会支持与障碍，以及改善结果的建议。参与者的见解为通用的结构化过渡过程提供了方法。
