黑山青少年癫痫患者的健康相关生活质量。

Health-related quality of life in adolescents with epilepsy in Montenegro.

机构信息

Institute of Child Health, Clinical Center of Montenegro, Podgorica, Montenegro; Faculty of Medicine, University of Montenegro, Podgorica, Montenegro.

Neurology Clinic, Clinical Center of Vojvodina, Novi Sad, Serbia; Faculty of Medicine, University of Novi Sad, Novi Sad, Serbia.

出版信息

Epilepsy Behav. 2017 Nov;76:105-109. doi: 10.1016/j.yebeh.2017.07.009. Epub 2017 Sep 14.

DOI:10.1016/j.yebeh.2017.07.009

PMID:28919387

Abstract

OBJECTIVE

The objective of this study was to establish potential risk factors for poor health-related quality of life among adolescents with epilepsy in Montenegro.

MATERIAL AND METHODS

A sample of 104 adolescents with epilepsy (age: 11-19years) at a tertiary referral center in Podgorica, Montenegro, completed the validated Serbian version of the QOLIE-AD-48 questionnaire. They were divided into two groups: a group with active epilepsy (60 adolescents) and a group with inactive epilepsy (44 adolescents). Demographic and clinical data were collected.

RESULTS

Adolescents with active epilepsy had low quality of life and felt the negative impact of the disease. They also had more cognitive impairments, felt more stigmatized, and had considerably more distorted perception of their health than adolescents with inactive epilepsy (p<0.05). Females reported better social support than males (p<0.05). Older males had lower grades at school (p<0.05) than the younger ones. As expected, adolescents with the highest number of seizures in the past two years had the lowest quality of life (p<0.05).

CONCLUSION

In our study, the quality of life in adolescents with epilepsy was determined by severity of the disease, age, and gender.

摘要

目的

本研究旨在确定黑山青少年癫痫患者健康相关生活质量较差的潜在风险因素。

材料与方法

在黑山波德戈里察的一家三级转诊中心，对 104 名年龄在 11-19 岁的青少年癫痫患者（癫痫活跃组 60 例，癫痫非活跃组 44 例）进行了问卷调查。他们完成了经过验证的塞尔维亚版 QOLIE-AD-48 问卷。收集了人口统计学和临床数据。

结果

癫痫活跃组青少年生活质量较差，感到疾病的负面影响较大。他们的认知障碍更多，感到更受歧视，对自己健康的感知也明显更扭曲，而癫痫非活跃组青少年则相反（p<0.05）。女性比男性报告获得了更好的社会支持（p<0.05）。年龄较大的男性比年龄较小的男性在学校的成绩较低（p<0.05）。正如预期的那样，过去两年内癫痫发作次数最多的青少年生活质量最低（p<0.05）。