Department of Pediatric Neurology, Pediatrics Center of Excellence, Children's Medical Center, Tehran University of Medical Sciences, Tehran, Iran.
Pediatric Health Research Center, Tabriz University of Medical Sciences, Tabriz, Iran.
Epilepsy Behav. 2014 Apr;33:69-72. doi: 10.1016/j.yebeh.2014.02.012. Epub 2014 Mar 13.
Psychosocial problems seem to be common in epilepsy, and they could negatively affect the social affairs and networking of adolescents with epilepsy. They could cause decreased self-esteem and social performance, leading to isolation and civil discrimination. This study was performed to assess the quality of life (QOL) of a group of adolescents with epilepsy in Iran.
An analytic cross-sectional study was performed in 197 young Iranian adolescents with epilepsy. To measure the QOL of these cases, the Persian version of the QOL in Epilepsy Inventory for Adolescents 48 (QOLIE-AD-48) scale was used.
The mean total score of the scale was 61.5±10.4. The highest mean was in the school behavior domain (83.85±12.27), while the lowest mean was in the domain of attitudes toward epilepsy (22.45±15.78). There was a significant correlation between QOL and age, number of drugs taken, and frequency of seizures per year. Sixty-six percent of the adolescents with epilepsy had never talked to their friends or teachers about their disease.
This study revealed an unsatisfactory state of the QOL of adolescents with epilepsy in our population in comparison with other studies. This indicates the need for greater concern about the psychological status and risk factors for the QOL of adolescents with epilepsy in Iran.
心理社会问题在癫痫患者中似乎很常见，它们可能会对青少年癫痫患者的社交事务和社交网络产生负面影响。这些问题可能导致自尊心下降和社交表现不佳，从而导致孤立和社会歧视。本研究旨在评估伊朗一组青少年癫痫患者的生活质量（QOL）。
对 197 名伊朗青少年癫痫患者进行了一项分析性横断面研究。为了衡量这些患者的 QOL，使用了青少年癫痫生活质量量表的波斯语版本（QOLIE-AD-48）。
该量表的平均总分为 61.5±10.4。得分最高的是学校行为领域（83.85±12.27），而对癫痫的态度领域得分最低（22.45±15.78）。QOL 与年龄、服用药物的数量以及每年发作的频率之间存在显著相关性。66%的癫痫青少年从未与朋友或老师谈论过他们的疾病。
与其他研究相比，本研究显示我们人群中青少年癫痫患者的 QOL 状况不尽如人意。这表明需要更加关注伊朗青少年癫痫患者的心理状态和 QOL 的风险因素。
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