D'Arrigo Rachel, Ziviani Jenny, Poulsen Anne A, Copley Jodie, King Gillian
a Level 3, Therapies Building, School of Health and Rehabilitation Sciences , The University of Queensland, St Lucia , Brisbane , Queensland , Australia.
b Bloorview Research Institute , 150 Kilgour Road, Toronto , ON , Canada.
Phys Occup Ther Pediatr. 2018 Feb;38(1):18-38. doi: 10.1080/01942638.2017.1373723. Epub 2017 Sep 27.
To examine the conceptual and clinometric properties of measures for parent engagement in developmental or rehabilitation interventions for children and youth (<18 years of age).
Four electronic databases were searched. Studies were included if they reported measures of at least one domain of parent engagement (i.e. affective, cognitive or behavioral). Reviewers independently identified measures and evaluated studies using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) and the CanChild Outcome Measures Rating Form.
A total of 9,500 unique papers were retrieved, and 36 reported parent engagement measurement. Four measures met inclusion criteria: the Parent Involvement Index (PII), the Parent Participation Measure (PPM), the General Adherence subscale of the Medical Outcomes Study (GAMOS) and the Triadic Intervention and Evaluation Rating Scale (TIERS). No measure captured all domains of in-session parent engagement. Two addressed out-of-session parent engagement. There were limitations in validity and reliability.
Few measures of parent engagement are available. Existing measures mostly captured the behavioral domain of in-session engagement, and none assessed cognitive or affective aspects of engagement. Out-of-session engagement was infrequently captured. There is currently no comprehensive measure of parent engagement in pediatric developmental and rehabilitation services that demonstrates good clinical utility or is conceptually and psychometrically sound.
探讨针对儿童和青少年（未满18岁）发育或康复干预中家长参与度测量方法的概念及测量学特性。
检索了四个电子数据库。若研究报告了至少一个家长参与度领域（即情感、认知或行为）的测量方法，则纳入研究。评审人员使用基于共识的健康测量工具选择标准（COSMIN）和加拿大儿童结局测量评分表独立识别测量方法并评估研究。
共检索到9500篇独特的论文，其中36篇报告了家长参与度测量。四项测量方法符合纳入标准：家长参与指数（PII）、家长参与度测量（PPM）、医学结局研究的一般依从性子量表（GAMOS）和三元干预与评估评分量表（TIERS）。没有一种测量方法涵盖了家长在治疗期间参与度的所有领域。两种方法涉及治疗期外的家长参与度。在有效性和可靠性方面存在局限性。
可用的家长参与度测量方法很少。现有测量方法大多涵盖了治疗期间参与度的行为领域，没有一种评估了参与度的认知或情感方面。很少有研究涉及治疗期外的参与度。目前尚无一种全面的测量方法可用于评估儿科发育和康复服务中家长的参与度，该方法既具有良好的临床实用性，又在概念和心理测量学上合理。
