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韩国患有先天性心脏病新生儿父亲的经历。

Experience of fathers of neonates with congenital heart disease in South Korea.

作者信息

Kim Jeonghyun, Cha Chiyoung

机构信息

Ewha Womans University, Republic of Korea.

School of Nursing, Ewha Womans University, Republic of Korea.

出版信息

Heart Lung. 2017 Nov-Dec;46(6):439-443. doi: 10.1016/j.hrtlng.2017.08.008. Epub 2017 Sep 27.

DOI:10.1016/j.hrtlng.2017.08.008
PMID:28958591
Abstract

BACKGROUND

Although the 1st month is critical for establishing fatherhood, rare studies have focused on this topic.

OBJECTIVE

To understand experiences of fathers of neonates with congenital heart disease.

METHODS

Descriptive phenomenology study.

RESULTS

The fathers were initially unaware of the seriousness of their neonates' condition. After they learned about it, they felt despair. They experienced guilt regarding their neonates' diagnosis and tried to take full responsibility for the situation to save their family from crisis. Furthermore, they were anxious because they could not do anything except wait for surgery. Their despair turned into gratitude postoperatively, and they developed positive views. Despite intending to be caring and affectionate, they returned to their socially assigned role as providers and passed on the caregiver role to the mothers.

CONCLUSION

Healthcare providers should assess anxiety levels and support fathers of neonates with congenital heart disease to help them develop their paternal role.

摘要

背景

尽管第一个月对于确立父亲身份至关重要,但很少有研究关注这个话题。

目的

了解患有先天性心脏病新生儿的父亲的经历。

方法

描述性现象学研究。

结果

父亲们最初并未意识到其新生儿病情的严重性。在得知病情后,他们感到绝望。他们对新生儿的诊断感到内疚,并试图为这种情况承担全部责任,以使家庭免于危机。此外,他们很焦虑,因为除了等待手术外他们无能为力。术后他们的绝望变成了感激之情,并形成了积极的看法。尽管他们打算关怀备至、充满爱意,但他们又回到了社会赋予他们的养家糊口的角色,将照顾者的角色交给了母亲。

结论

医疗保健提供者应评估焦虑水平,并支持患有先天性心脏病新生儿的父亲,以帮助他们发挥父亲的角色。

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