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经股骨截肢后成为骨整合假体使用者的过程:一项定性研究。

The process of becoming a user of an osseointegrated prosthesis following transfemoral amputation: a qualitative study.

作者信息

Hansen Cathrine Hjorth, Hansen Rehne Lessman, Jørgensen Peter Holmberg, Petersen Klaus Kjaer, Norlyk Annelise

机构信息

a Section for Nursing, Department of Public Health , Aarhus University , Aarhus , Denmark.

b Department of Orthopaedic Surgery , University Hospital of Aarhus , Aarhus , Denmark.

出版信息

Disabil Rehabil. 2019 Feb;41(3):276-283. doi: 10.1080/09638288.2017.1385651. Epub 2017 Sep 29.

DOI:10.1080/09638288.2017.1385651
PMID:28960110
Abstract

PURPOSE

To investigate what characterizes the process of becoming a user of an osseointegrated prosthesis following transfemoral amputation.

METHOD

The study is based on the descriptive phenomenological framework Reflective Lifeworld Research. Data were collected through in-depth interviews with seven participants who had undergone transfemoral implant surgery and currently used their osseointegrated prosthesis. Data were analyzed according to the guidelines given in Reflective Lifeworld Research.

RESULTS

The essential meaning of becoming a user of an osseointegrated prosthesis is characterized by determination to achieve rehabilitation results as well as a struggle to get familiar with the new prosthesis. When familiar with the prosthesis, participants begin to experience radical improvements in their everyday life, compared to their life with the socket suspended prosthesis. The essential meaning is elaborated on in four constituents: Determination to achieve rehabilitation results with the short training prosthesis, struggling to get familiar with the osseointegrated prosthesis, experiencing improvements in everyday life and reconnecting with one's prior self-perception.

CONCLUSION

All the participants experienced increased action space and a more positive outlook on life. However, it took determination and stamina to become a user of an osseointegrated prosthesis, and participants faced several challenges throughout this process. Consequently, it remains important to raise awareness of the difficulties faced during this process. Implications for Rehabilitation The findings from this study suggest an increased healthcare support to users of an transfemoral osseointegrated prosthesis in the period of rehabilitation and adjustment, as the results of being able to use the osseointegrated prosthesis may outweigh the obstacles of getting there. Implementation of long-term follow-up and psychosocial support initiatives may improve the adjustment process following osseointegration. Support of patients with an osseointegrated prosthesis may be facilitated through formation of specific rehabilitation groups together with increased use of information technology such as social media and relevant online communities which provide forums for interaction and dialog with people in similar situations.

摘要

目的

探讨经股截肢后成为骨整合假体使用者的过程具有哪些特征。

方法

本研究基于描述性现象学框架“反思性生活世界研究”。通过对7名接受过经股植入手术且目前正在使用骨整合假体的参与者进行深入访谈来收集数据。数据根据“反思性生活世界研究”给出的指导方针进行分析。

结果

成为骨整合假体使用者的本质意义表现为实现康复效果的决心以及熟悉新假体的努力。熟悉假体后,与使用悬吊式接受腔假体的生活相比,参与者开始在日常生活中体验到根本性的改善。这一本质意义在四个要素中得以阐述:使用短期训练假体实现康复效果的决心、努力熟悉骨整合假体、体验日常生活的改善以及重新与之前的自我认知建立联系。

结论

所有参与者都体验到行动空间的增加和对生活更积极的看法。然而,成为骨整合假体使用者需要决心和毅力,并且参与者在这个过程中面临了几个挑战。因此,提高对这一过程中所面临困难的认识仍然很重要。对康复的启示 本研究结果表明,在康复和调整期间,应增加对经股骨整合假体使用者的医疗支持,因为能够使用骨整合假体的结果可能超过实现这一目标的障碍。实施长期随访和心理社会支持举措可能会改善骨整合后的调整过程。通过组建特定的康复小组,以及增加使用社交媒体和相关在线社区等信息技术,为处于类似情况的人们提供互动和对话的论坛,可能会促进对骨整合假体患者的支持。

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