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颅面畸形与母亲的心理功能:社会支持的中介作用。

Craniofacial anomalies and mothers' psychological functioning: The mediating role of social support.

作者信息

Case Rosalind Jl, Anderson Alastair, Walsh Rodney

机构信息

Institute for Social Neuroscience, Monash University, Melbourne, Victoria, Australia.

Florey Institute of Neuroscience and Mental Health, Monash University, Melbourne, Victoria, Australia.

出版信息

J Paediatr Child Health. 2018 Feb;54(2):148-152. doi: 10.1111/jpc.13710. Epub 2017 Oct 2.

Abstract

AIM

To examine the psychological and psychosocial service needs of mothers of children with craniofacial anomalies (CFAs).

METHODS

Mothers (n = 55) of children from newborn to 6 years with CFA completed self-report measures of psychological distress, quality of life and perceived social support.

RESULTS

Mothers' psychological distress levels were significantly higher than those in a normative population. Mothers reported lower quality of life than the normative sample. Social support mediated the relationship between quality of life and psychological distress. While most mothers reported a willingness to receive formal psychological support for issues relating to their child's CFA, few had been offered such services.

CONCLUSIONS

Mothers of children with CFAs may experience increased psychological distress in comparison with the general population. Increased social support may reduce the risk of psychological distress, thus enhancing quality of life among such mothers. The majority of mothers of children with CFAs in Australia may not be routinely offered psychological support services in spite of their elevated psychological risk.

摘要

目的

探讨颅面畸形(CFA)患儿母亲的心理和社会心理服务需求。

方法

55名患有CFA的新生儿至6岁儿童的母亲完成了心理困扰、生活质量和感知社会支持的自我报告测量。

结果

母亲的心理困扰水平显著高于正常人群。母亲报告的生活质量低于正常样本。社会支持介导了生活质量与心理困扰之间的关系。虽然大多数母亲表示愿意接受与孩子的CFA相关问题的正式心理支持,但很少有人获得过此类服务。

结论

与一般人群相比,CFA患儿的母亲可能会经历更多的心理困扰。增加社会支持可能会降低心理困扰的风险,从而提高此类母亲的生活质量。尽管澳大利亚大多数CFA患儿的母亲心理风险较高,但她们可能无法常规获得心理支持服务。

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