Carter Brian, Brockman Manuel, Garrett Jeremy, Knackstedt Angie, Lantos John
School of Medicine, University of Missouri-Kansas City, Kansas City, MO, USA.
Children's Mercy Bioethics Center, 2401 Gillham Road, Kansas City, MO, 64108, USA.
HEC Forum. 2018 Jun;30(2):91-102. doi: 10.1007/s10730-017-9339-y.
In most children's hospitals, there are very few ethics consultations, even though there are many ethically complex cases. We hypothesize that the reason for this may be that hospitals develop different mechanisms to address ethical issues and that many of these mechanisms are closer in spirit to the goals of the pioneers of clinical ethics than is the mechanism of a formal ethics consultation. To show how this is true, we first review the history of collaboration between philosophers and physicians about clinical dilemmas. Then, as a case-study, we describe the different venues that have developed at one children's hospital to address ethical issues. At our hospital, there are nine different venues in which ethical issues are regularly and explicitly addressed. They are (1) ethics committee meetings, (2) Nursing Ethics Forum, (3) ethics Brown Bag workshops, (4) PICU ethics rounds, (5) Grand Rounds, (6) NICU Comprehensive Care Rounds, (7) Palliative Care Team (PaCT) case conferences, (8) multidisciplinary consults in Fetal Health Center, and (9) ethics consultations. In our hospital, ethics consults account for only a tiny percentage of ethics discussions. We suspect that most hospitals have multiple and varied venues for ethics discussions. We hope this case study will stimulate research in other hospitals analyzing the various ways in which ethicists and ethics committees can build an ethical environment in hospitals. Such research might suggest that ethicists need to develop a different set of "core competencies" than the ones that are needed to do ethics consultations. Instead, they should focus on their skills in creating multiple "moral spaces" in which regular and ongoing discussion of ethical issues would take place. A successful ethicist would empower everyone in the hospital to speak up about the values that they believe are central to respectful, collaborative practice and patient care. Such a role is closer to what the first hospital philosophers set out to do than in the role of the typical hospital ethics consultant today.
在大多数儿童医院,伦理咨询很少,尽管存在许多伦理复杂的病例。我们推测,其原因可能是医院制定了不同的机制来处理伦理问题,而且其中许多机制在精神上比正式伦理咨询机制更接近临床伦理先驱者的目标。为了说明这一点是如何成立的,我们首先回顾哲学家与医生在临床困境方面的合作历史。然后,作为一个案例研究,我们描述一家儿童医院为处理伦理问题而形成的不同场所。在我们医院,有九个不同的场所会定期且明确地处理伦理问题。它们分别是:(1)伦理委员会会议,(2)护理伦理论坛,(3)伦理午餐研讨会,(4)儿科重症监护室伦理查房,(5)大查房,(6)新生儿重症监护室综合护理查房,(7)姑息治疗团队(PaCT)病例讨论会,(8)胎儿健康中心的多学科会诊,以及(9)伦理咨询。在我们医院,伦理咨询在伦理讨论中只占极小的比例。我们怀疑大多数医院都有多种不同的伦理讨论场所。我们希望这个案例研究能激发其他医院开展研究,分析伦理学家和伦理委员会可以通过哪些不同方式在医院营造伦理环境。这样的研究可能表明,伦理学家需要培养一套与进行伦理咨询所需的“核心能力”不同的能力。相反,他们应专注于创造多个“道德空间”的技能,在这些空间里可以定期且持续地讨论伦理问题。一位成功的伦理学家会使医院里的每个人都有能力说出他们认为对于尊重、协作式医疗实践和患者护理至关重要的价值观。这样的角色比当今典型的医院伦理顾问的角色更接近最初医院哲学家们所设定的目标。