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本文引用的文献

1
Pediatric Ethics Consultation Services.儿科伦理咨询服务。
Pediatrics. 2023 Mar 1;151(3). doi: 10.1542/peds.2022-058947.
2
The Accessibility of Inpatient Pediatric Ethics Consultation Services to Patient Caregivers.住院儿科患者伦理咨询服务对患者照顾者的可及性。
Hosp Pediatr. 2022 Sep 1;12(9):e291-e294. doi: 10.1542/hpeds.2022-006662.
3
Exploring Parental Decision Making for a Child With a Life-Limiting Condition: An Interpretive Description Study.探索针对患有危及生命疾病儿童的家长决策:一项诠释性描述研究。
J Hosp Palliat Nurs. 2022 Apr 1;24(2):140-146. doi: 10.1097/NJH.0000000000000839.
4
Relational, Emotional, and Pragmatic Attributes of Ethics Consultations at a Children's Hospital.儿童医院伦理咨询的关系、情感和实用属性。
Pediatrics. 2021 Apr;147(4). doi: 10.1542/peds.2020-1087. Epub 2021 Mar 5.
5
When Do Pediatricians Call the Ethics Consultation Service? Impact of Clinical Experience and Formal Ethics Training.当儿科医生何时会呼叫伦理咨询服务?临床经验和正式伦理培训的影响。
AJOB Empir Bioeth. 2020 Apr-Jun;11(2):83-90. doi: 10.1080/23294515.2020.1737983. Epub 2020 Mar 24.
6
Development and Retrospective Review of a Pediatric Ethics Consultation Service at a Large Academic Center.大型学术中心儿科伦理咨询服务的发展与回顾。
HEC Forum. 2020 Sep;32(3):269-281. doi: 10.1007/s10730-020-09397-6.
7
Pediatric Ethics Consultation: Practical Considerations for the Clinical Ethics Consultant.儿科伦理咨询:临床伦理顾问的实际考量
J Clin Ethics. 2019 Fall;30(3):270-283.
8
Content review of pediatric ethics consultations at a cancer center.儿科癌症中心的伦理咨询内容审查。
Pediatr Blood Cancer. 2019 May;66(5):e27617. doi: 10.1002/pbc.27617. Epub 2019 Jan 21.
9
Ethics of End of Life Decisions in Pediatrics: A Narrative Review of the Roles of Caregivers, Shared Decision-Making, and Patient Centered Values.儿科临终决策的伦理:关于照顾者角色、共同决策和以患者为中心价值观的叙述性综述
Behav Sci (Basel). 2018 Apr 26;8(5):42. doi: 10.3390/bs8050042.
10
Why Are There So Few Ethics Consults in Children's Hospitals?儿童医院的伦理咨询为何如此之少?
HEC Forum. 2018 Jun;30(2):91-102. doi: 10.1007/s10730-017-9339-y.

儿科伦理决策的具体趋势:一家儿童医院18年伦理咨询案例回顾

Specific Trends in Pediatric Ethical Decision-Making: An 18-Year Review of Ethics Consultation Cases in a Pediatric Hospital.

作者信息

Bosompim Yaa, Aultman Julie, Pope John

机构信息

Northeast Ohio Medical University, Rootstown, OH, USA.

Akron Children's Hospital, Akron, OH, USA.

出版信息

HEC Forum. 2025 Mar;37(1):9-25. doi: 10.1007/s10730-024-09524-7. Epub 2024 Feb 28.

DOI:10.1007/s10730-024-09524-7
PMID:38416336
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11832791/
Abstract

This is a qualitative examination of ethics consultation requests, outcomes, and ethics committee recommendations at a tertiary/quaternary pediatric hospital in the U.S. The purpose of this review of consults over an 18-year period is to identify specific trends in the types of ethical dilemmas presented in our pediatric setting, the impact of consultation and committee development on the number and type of consults provided, and any clinical features and/or challenges that emerged and contributed to the nature of ethical situations and dilemmas. Furthermore, in reviewing clinical ethics consultation trends for nearly two decades, we can identify topic areas for further ethics education and training for ethics consultants, ethics committee members, and pediatric healthcare teams and professionals based on our experiences. Our study with nearly two decades of data prior to the COVID-19 pandemic can serve as groundwork for future comparisons of consultation requests and ethics support for pediatric hospitals prior to, during, and following a pandemic.

摘要

这是对美国一家三级/四级儿科医院伦理咨询请求、结果及伦理委员会建议的定性研究。本次对18年期间咨询情况的回顾旨在确定儿科环境中出现的伦理困境类型的具体趋势、咨询及委员会发展对所提供咨询的数量和类型的影响,以及出现的并导致伦理情况和困境性质的任何临床特征和/或挑战。此外,通过回顾近二十年的临床伦理咨询趋势,我们可以根据自身经验确定伦理咨询师、伦理委员会成员以及儿科医疗团队和专业人员进一步伦理教育和培训的主题领域。我们在2019年新冠疫情大流行之前近二十年数据的研究可以作为未来对儿科医院在大流行之前、期间和之后的咨询请求和伦理支持进行比较的基础。