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倾听长期护理机构居民的声音——一种基于国际的生活质量评估方法。

Hearing the Voice of the Resident in Long-Term Care Facilities-An Internationally Based Approach to Assessing Quality of Life.

机构信息

Hebrew Senior Life, Boston, MA.

LUCAS and Faculty of Social Sciences the Katholieke Universiteit Leuven, Belgium.

出版信息

J Am Med Dir Assoc. 2018 Mar;19(3):207-215. doi: 10.1016/j.jamda.2017.08.010. Epub 2017 Oct 10.

DOI:10.1016/j.jamda.2017.08.010
PMID:29030309
Abstract

OBJECTIVES

interRAI launched this study to introduce a set of standardized self-report measures through which residents of long-term care facilities (LTCFs) could describe their quality of life and services. This article reports on the international development effort, describing measures relative to privacy, food, security, comfort, autonomy, respect, staff responsiveness, relationships with staff, friendships, and activities. First, we evaluated these items individually and then combined them in summary scales. Second, we examined how the summary scales related to whether the residents did or did not say that the LTCFs in which they lived felt like home.

DESIGN

Cross-sectional self-report surveys by residents of LTCFs regarding their quality of life and services.

SETTING/PARTICIPANTS: Resident self-report data came from 16,017 individuals who resided in 355 LTCFs. Of this total, 7113 were from the Flanders region of Belgium, 5143 residents were from Canada, and 3358 residents were from the eastern and mid-western United States. Smaller data sets were collected from facilities in Australia (20), the Czech Republic (72), Estonia (103), Poland (118), and South Africa (87).

MEASUREMENTS

The interRAI Self-Report Quality of Life Survey for LTCFs was used to assess residents' quality of life and services. It includes 49 items. Each area of inquiry (eg, autonomy) is represented by multiple items; the item sets have been designed to elicit resident responses that could range from highly positive to highly negative. Each item has a 5-item response set that ranges from "never" to "always."

RESULTS

Typically, we scored individual items scored based on the 2 most positive categories: "sometimes" and "always." When these 2 categories were aggregated, among the more positive items were: being alone when wished (83%); decide what clothes to wear (85%); get needed services (87%); and treated with dignity by staff (88%). Areas with a less positive response included: staff knows resident's life story (30%); resident has enjoyable things to do on weekends (32%); resident has people to do things with (33%); and resident has friendly conversation with staff (45%). We identified 5 reliable scales; these scales were positively associated with the resident statement that the LTCF felt like home. Finally, international score standards were established for the items and scales.

CONCLUSIONS

This study establishes a set of standardized, self-report items and scales with which to assess the quality of life and services for residents in LTCFs. The study also demonstrates that these scales are significantly related to resident perception of the home-like quality of the facilities.

摘要

目的

interRAI 开展此项研究旨在引入一套标准化的自评量表,以供长期护理机构(LTCF)的居民用来描述其生活质量和服务情况。本文报告了这项国际发展工作,介绍了与隐私、食物、安全、舒适、自主、尊重、员工响应性、与员工的关系、友谊和活动相关的措施。首先,我们单独评估了这些项目,然后将它们组合成综合量表。其次,我们研究了这些综合量表与居民是否表示居住的 LTCF 有宾至如归之感之间的关系。

设计

LTCF 居民进行的生活质量和服务自评的横断面研究。

地点/参与者:居民自评数据来自于 355 个 LTCF 中 16017 名居民。其中,7113 人来自比利时的佛兰德地区,5143 名居民来自加拿大,3358 名居民来自美国东部和中西部。还从澳大利亚(20 个)、捷克共和国(72 个)、爱沙尼亚(103 个)、波兰(118 个)和南非(87 个)的设施中收集了较小的数据集。

测量

使用 interRAI 长期护理机构自评生活质量量表评估居民的生活质量和服务。它包含 49 个项目。每个查询领域(例如,自主)都由多个项目代表;这些项目集旨在引出居民的回答,这些回答的范围可以从非常积极到非常消极。每个项目都有一个 5 项的回答集,范围从“从不”到“总是”。

结果

通常情况下,我们根据最积极的两个类别对个别项目进行评分:“有时”和“总是”。当将这两个类别汇总时,在较为积极的项目中包括:希望独处时可以独处(83%);决定穿什么衣服(85%);获得所需的服务(87%);以及受到员工的尊重(88%)。回应不太积极的领域包括:员工了解居民的生活故事(30%);居民在周末有愉快的事情可做(32%);居民有可以一起做事的人(33%);以及居民与员工进行友好的交谈(45%)。我们确定了 5 个可靠的量表;这些量表与居民表示 LTCF 有宾至如归之感呈正相关。最后,为项目和量表制定了国际评分标准。

结论

本研究建立了一套标准化的自评项目和量表,用于评估长期护理机构居民的生活质量和服务。该研究还表明,这些量表与居民对设施家庭般质量的感知显著相关。

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