Bauquier Charlotte, Pannard Myriam, Préau Marie
Sante Publique. 2017 Oct 2;29(4):547-550. doi: 10.3917/spub.174.0547.
Community-based research drives innovation in major fields of public health, HIV/AIDS being the most emblematic example (Demange, Henry & Préau, 2012), and hepatitis. However, this type of research appears to be more difficult to develop in certain specific diseases, such as cancer (Shankand, Saïas & Friboulet, 2009). This article proposes various approaches concerning current citizen mobilization in relation to cancer research, including potential new levers to the development of participative and community-based research based on the recent creation of the Seintinelles platform, designed to federate researchers and citizens concerned by the problem of cancer. This reflection will be supported by more global issues concerning health democracy.
基于社区的研究推动了公共卫生主要领域的创新,艾滋病是最具代表性的例子(德芒热、亨利和普雷奥,2012年),还有肝炎。然而,这类研究在某些特定疾病中似乎更难开展,比如癌症(尚坎德、赛亚斯和弗里布勒,2009年)。本文提出了有关当前公民参与癌症研究动员的各种方法,包括基于最近创建的哨兵平台开发参与式和基于社区的研究的潜在新杠杆,该平台旨在联合关注癌症问题的研究人员和公民。这一思考将得到有关健康民主的更广泛问题的支持。