Chan Yiu Man, Chan Oi Ka, Cheng Yvonne Kwun Yue, Leung Tak Yeung, Lao Terence Tzu Hsi, Sahota Daljit Singh
Department of Obstetrics and Gynaecology, The Chinese University of Hong Kong, Hong Kong Special Administrative Region.
Department of Obstetrics and Gynaecology, The Chinese University of Hong Kong, Hong Kong Special Administrative Region.
Taiwan J Obstet Gynecol. 2017 Oct;56(5):618-621. doi: 10.1016/j.tjog.2017.08.007.
To explore the acceptance of pregnant Chinese women on giving birth to a child with beta-thalassemia major.
Women's acceptance on having a child with beta thalassemia major was assessed using standard gamble metrics during an interviewer-administered survey on 309 women recruited in the antenatal clinic. Utility scores were determined and the association with sociodemographic factors was assessed.
The median utility score for having a child with beta-thalassemia major was 0.5 (0-0.65). Women having either higher educational level or family income had significantly higher utility scores (P < 0.05) corresponding to a higher acceptance. During the interview 59.9% participants indicated that they would elect to undergo a termination of pregnancy if their fetus was diagnosed with beta-thalassemia major but 26.5% participants were unable to decide what action they would take.
Many Chinese pregnant women are ambivalent about giving birth to a baby with beta-thalassemia major. Women with higher educational level or higher family income had a higher acceptance towards the condition.
探讨中国孕妇对生育重型β地中海贫血患儿的接受程度。
在对产前诊所招募的309名女性进行的访谈式调查中，使用标准博弈法评估女性对生育重型β地中海贫血患儿的接受程度。确定效用得分，并评估其与社会人口学因素的关联。
生育重型β地中海贫血患儿的效用得分中位数为0.5（0 - 0.65）。教育水平较高或家庭收入较高的女性效用得分显著更高（P < 0.05），表明接受程度更高。在访谈中，59.9%的参与者表示，如果胎儿被诊断为重型β地中海贫血，她们会选择终止妊娠，但26.5%的参与者无法决定会采取什么行动。
许多中国孕妇对生育重型β地中海贫血患儿态度矛盾。教育水平较高或家庭收入较高的女性对这种情况的接受程度更高。
