青少年和青年期癌症幸存者过渡准备度量表条目池的开发与内容验证。
Development and Content Validation of the Transition Readiness Inventory Item Pool for Adolescent and Young Adult Survivors of Childhood Cancer.
机构信息
The Children's Hospital of Philadelphia.
University of Pennsylvania.
出版信息
J Pediatr Psychol. 2017 Oct 1;42(9):983-994. doi: 10.1093/jpepsy/jsx095.
OBJECTIVE
The development of the Transition Readiness Inventory (TRI) item pool for adolescent and young adult childhood cancer survivors is described, aiming to both advance transition research and provide an example of the application of NIH Patient Reported Outcomes Information System methods.
METHODS
Using rigorous measurement development methods including mixed methods, patient and parent versions of the TRI item pool were created based on the Social-ecological Model of Adolescent and young adult Readiness for Transition (SMART).
RESULTS
Each stage informed development and refinement of the item pool. Content validity ratings and cognitive interviews resulted in 81 content valid items for the patient version and 85 items for the parent version.
CONCLUSIONS
TRI represents the first multi-informant, rigorously developed transition readiness item pool that comprehensively measures the social-ecological components of transition readiness. Discussion includes clinical implications, the application of TRI and the methods to develop the item pool to other populations, and next steps for further validation and refinement.
目的
描述青少年和年轻成年癌症幸存者过渡准备度量表（TRI）项目库的开发情况，旨在推进过渡研究，并为 NIH 患者报告结局信息系统方法的应用提供范例。
方法
采用混合方法等严格的测量开发方法，根据青少年和年轻成年过渡准备度的社会-生态模型（SMART），创建了患者和家长版 TRI 项目库。
结果
各阶段的信息均为项目库的开发和完善提供了参考。内容有效性评分和认知访谈为患者版产生了 81 个内容有效的项目，为家长版产生了 85 个项目。
结论
TRI 是第一个多信息源、严格开发的过渡准备度项目库，全面衡量了过渡准备度的社会-生态组成部分。讨论包括临床意义、TRI 的应用以及将项目库开发方法应用于其他人群的下一步，以及进一步验证和完善的后续步骤。
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